As we spread the news about ThinkGenetic we love to chat with the community and answer any questions about our exciting site. As these questions come in we like to share them, so, please keep sending your questions and suggestions via the comment section or send us a private note.
Here to answer a recent request is Co-Founder, patient and ThinkGenetic champion, Dave Jacob…
Question: What kind of ways do you need parents to be involved?
During our beta launch in June and July, we want you to interrogate ThinkGenetic about your child’s particular disease and give us feedback on the advice we provided as well as other questions that may not be answered so we can add more content.
You can also add your child or your own personal journey with this disease in our Share Your Story section. It may help others identify or understand their particular journey. It will also provide a way to communicate with others with the same disease.
Additionally, you can spread the word about ThinkGenetic to your genetic disease support and advocacy groups, doctors or centers of excellence to help others get answers to their particular medical questions. Remember, ThinkGenetic is a free service to patients and their healthcare providers.
Lastly, we want to shed light to as many diseases and disorders as possible so we need your help expanding our coverage through a Kickstarter campaign. If you’re in a possible to pledge as little as $25 it will help us reach our goal. If not, please share our mission and the link at http://bit.ly/ThinkGenetic to others who may believe in our work.