ThinkGenetic Blog

News from ThinkGenetic

  • Home
  • FindEHR
  • Disease Knowledge Base
  • News
  • About Us
  • Contact Us
Browse Diseases

ThinkGenetic Extends Handshake to the National Gaucher Foundation

October 6, 2016 Ruth O'Keefe Leave a Comment

Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease

ngf-partnershipIn a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with ThinkGenetic, Inc.

The NGF is a prime example of how individuals can come together to seek change in the lives of those with genetic diseases. The NGF was involved in pioneering research targeted at correcting the enzyme deficiency that causes Gaucher disease. Thanks to efforts by hardworking scientists, the NIH, activist parents, and the NGF and others, enzyme replacement therapy (ERT) became available in the United States in the early 1990s. It is hard-working and driven organizations like these that excite the advocates at ThinkGenetic.

Len Barker President and Co-Founder ThinkGenetic, Inc.

Len Barker
President and Co-Founder
ThinkGenetic, Inc.

“The NGF has a long history of providing education and outreach about Gaucher disease to healthcare providers, people and families living with Gaucher disease, and people seeking a diagnosis.”, says ThinkGenetic President, Len Barker. “This partnership will help make sure that our content supports the needs of the Gaucher disease community and we will give the NGF another excellent resource for support those with the disease.”

Working as advocacy partners, both NGF and ThinkGenetic hope to increase accessible, interactive information on the thinkgenetic.com site to help patients find physicians, treatment, financial assistance and information related to all aspects of Gaucher disease in alignment with the NGFs mission and goals.

Amy Blum COO NGF

Amy Blum
COO
NGF

“NGF is excited to partner with ThinkGenetic to provide even more resources to our providers and patients” explains Amy Blum, Chief Operating Officer at National Gaucher Foundation. “We believe that patients should have the education and tools to understand the disease and ways to treat it. We feel this partnership will help achieve this.”

ThinkGenetic pursues agreements with strategic partners in order to share information, expertise, knowledge, and web content, and to promote greater awareness of available advocacy resources in the field of genetic health. In addition, advocacy organizations become eligible for charitable donations from ThinkGenetic based upon the allocation of ThinkPoints users designate from their use with the site.

 

 

 

Filed Under: News, Partners Tagged With: education, Gaucher disease, Len Barker, National Gaucher Foundation, NGF, Partners, Ruth O'Keefe

About Ruth O'Keefe

Ruth maintains strong engagement with patients, partners, healthcare providers, and other communities to further the ThinkGenetic mission effectively and successfully. When not advocating for ThinkGenetic and its community, Ruth enjoys spending time outdoors with her three boys and helping businesses create and maintain a productive footprint online.

Join the Conversation Cancel reply

Your email address will not be published. Required fields are marked *

Search the News & Press

Connect with Us

     
  • Home
  • News
  • About Us
  • Contact Us
  • Sponsor / Advertise
  • Disclaimers
  • Terms and Conditions
  • Privacy Policy
©2022 ThinkGenetic. All Rights Reserved.ThinkGenetic does not provide medical advice, diagnosis or treatment. Click here for more information.

Copyright © 2022 · Genesis Framework · WordPress · Log in