Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease
In a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with ThinkGenetic, Inc.
The NGF is a prime example of how individuals can come together to seek change in the lives of those with genetic diseases. The NGF was involved in pioneering research targeted at correcting the enzyme deficiency that causes Gaucher disease. Thanks to efforts by hardworking scientists, the NIH, activist parents, and the NGF and others, enzyme replacement therapy (ERT) became available in the United States in the early 1990s. It is hard-working and driven organizations like these that excite the advocates at ThinkGenetic.
“The NGF has a long history of providing education and outreach about Gaucher disease to healthcare providers, people and families living with Gaucher disease, and people seeking a diagnosis.”, says ThinkGenetic President, Len Barker. “This partnership will help make sure that our content supports the needs of the Gaucher disease community and we will give the NGF another excellent resource for support those with the disease.”
Working as advocacy partners, both NGF and ThinkGenetic hope to increase accessible, interactive information on the thinkgenetic.com site to help patients find physicians, treatment, financial assistance and information related to all aspects of Gaucher disease in alignment with the NGFs mission and goals.
“NGF is excited to partner with ThinkGenetic to provide even more resources to our providers and patients” explains Amy Blum, Chief Operating Officer at National Gaucher Foundation. “We believe that patients should have the education and tools to understand the disease and ways to treat it. We feel this partnership will help achieve this.”
ThinkGenetic pursues agreements with strategic partners in order to share information, expertise, knowledge, and web content, and to promote greater awareness of available advocacy resources in the field of genetic health. In addition, advocacy organizations become eligible for charitable donations from ThinkGenetic based upon the allocation of ThinkPoints users designate from their use with the site.