France based support group, Cutis Laxa Internationale, becomes first International ThinkGenetic Advocacy Partner
Cutis Laxa Internationale became an official ThinkGenetic Advocacy Partner today, the first advocacy partner based outside the United States. With over 90% of those living with a genetic disease residing outside the US the amount of international advocacy partners is expected to grow rapidly. People looking for answers to their questions about genetic diseases on ThinkGenetic.com came from 90 countries in November alone.
“Cutis Laxa Internationale is happy to partner with ThinkGenetic,” expressed Marie-Claude BOITEUX of Cutis Laxa Internationale. “We are registered in France but CLI in an International Organization, the only support group worldwide dedicated to cutis laxa.”
ThinkGenetic has a special relationship with cutis laxa and Cutis Laxa Internationale. ThinkGenetic co-founder Dave Jacob’s diagnosis with cutis laxa several years ago was a motivating factor for forming the relationships that eventually turned into ThinkGenetic.
“At first I was discouraged as a newly diagnosed patient that the only support group was in France but to my delight, the group was full of knowledge and experience, something I sorely needed,” explained Jacob. “I am honored to welcome Cutis Laxa Internationale to the ThinkGenetic community.”
Now, Cutis Laxa Internationale proudly displays the ThinkGenetic Advocacy Partner banner on their website alongside other incredible organizations such as NORD, Genetic Alliance, EURODIS and Alliance Maladies Rare.
Boiteux expanded stating, “ThinkGenetic perfectly fits with our main aims: Breaking sufferers’ isolation and loneliness, helping them get a diagnosis, knowing their disorder better and helping research. Our partnership will raise awareness on cutis laxa and help both ThinkGenetic and Cutis Laxa Internationale advocate for people with genetic disorders.”
ThinkGenetic enters into Advocacy Partner agreements with organizations, support groups and charities in order to share information, expand the application’s expertise, increase public awareness of conditions and provide resources to those living with or caring for someone with a genetic disease or disorder.