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Care Day for Hereditary ATTR Amyloidosis in Iowa

May 8, 2017 Carol Ogg, BS Pharm Leave a Comment

Join us for a live Care Day Event in Iowa City sponsored by Alnylam Pharmaceuticals presented in partnership with ThinkGenetic.

Come learn about topics relating to hATTR amyloidosis including:

  • Disease overview
  • All in the Family – Genetics and inheritance
  • Living with hATTR amyloidosis
  • Learning about a Care Model
  • Ideas for managing the challenges facing affected families
  • Resources and support for patients, families and caregivers

Presenters

Michael Shy, M.D.
Department of Neurology
University of Iowa
Shawna Feeley, MS, CGC
Certified Genetic Counselor
University of Iowa
Carol Ogg, BS Pharm, ThinkGenetic
Carol Ogg, BS Pharm
ThinkGenetic

Date and Time

Saturday, May 20, 2017
8:30 AM check in
9:00 AM start
2:00 PM end

Location

Sheraton Iowa City Hotel
210 S Dubuque St.
Iowa City, IA 52240

There is no cost to attend the event. Complimentary refreshments provided.

Register today!

Call 1-844-747-1620 or visit www.surveymonkey.com/r/maycareday

Share the PDF invitation. Use #amyloidosis to share on Facebook, Twitter and Instagram.

*previously known as familial amyloidotic polyneuropathy (FAP) or familial amyloidotic cardiomyopathy (FAC). This event is sponsored by Alnylam Pharmaceuticals.

 

Filed Under: Events, News, Partners Tagged With: Alnylam Pharmaceuticals, Care Day, FAC, familial amyloidotic cardiomyopathy, familial amyloidotic polyneuropathy, FAP, hATTR amyloidosis, hereditary ATTR Amyloidosis

About Carol Ogg, BS Pharm

Carol Ogg is a clinical pharmacist with over two decades of industry experience helping patients living with lysosomal storage diseases. After leaving industry in 2014 and starting her own rare genetic disease consulting firm, Carol saw an unmet educational need and began her work on a collection of educational primers for industry professionals to further their understanding of the basics, which would ultimately yield to a more meaningful and robust conversation with customers. Carol’s passion in the arena of lysosomal storage diseases continues as she continues her journey to make a global difference, one patient at a time. Carol is a critical advsior to ThinkGenetic, Inc. helping to achieving the mission of reducing the time to diagnose genetic conditions and letting the world know that answers to questions about genetic diseases can be found at ThinkGenetic.com and ThinkGenetic SymptomMatcher.

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