Alnylam and ThinkGenetic are looking forward to another successful Care Day Event for hATTR amyloidosis in Albany, NY on the 12 of August.
Come learn about topics relating to hATTR amyloidosis including:
- Disease overview
- Genetics and inheritance
- Ideas for managing the challenges facing affected families
- Resources and support for patients, families, and caregivers
Presenters
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Julia WynnSenior Genetic Counselor/ClinicalResearch ManagerColumbia University Medical Center
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Dr. Janice WiesmanNeurologist Bellevue Hospital
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Carol Ogg, BS Pharm
ThinkGenetic
Date and Time
Saturday, August 12, 2017
10:30 AM check in
11:00 AM start
3:00 PM end
Location
Renaissance Albany Hotel
144 State Street
Albany, NY 12207
There is no cost to attend the event. Complimentary refreshments provided.
Register today!
Call 1-844-747-1620 or visit caredayevent.com
Share the PDF invitation. Use #amyloidosis to share on Facebook, Twitter and Instagram.
*previously known as familial amyloidotic polyneuropathy (FAP) or familial amyloidotic cardiomyopathy (FAC). This event is sponsored by Alnylam Pharmaceuticals.
I enjoyed attending the event and interacting with the patients, Alnylam staff and of course the speakers Julia Wynn and Dr. Janice Wiesman. One of the fascinating things is that even though their rare, genetic disease odyssey is different than mine, we all share the frustration of visiting many doctors and caregivers before figuring out our disease.
Thanks, Alnylam for an excellent and informative event.