Today, ThinkGenetic joins the cause to help increase awareness of CDKL5 disorders by welcoming the International Foundation for CDKL5 Research (IFCR) into the ThinkGenetic Advocacy Partner Program.
CDKL5 (cyclin-dependent kinase-like 5) disorder is a rare genetic syndrome that results in early-onset, difficult-to-control seizures, neurodevelopmental issues, and other lifelong health issues. Although it has been found in many boys, CDKL5 disorder usually occurs in girls. The IFCR leads the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts, and by increasing awareness of CDKL5 disorder, while enhancing the quality of life for those affected by CDKL5 disorder by providing information, programs, and services.
“I am very happy to join forces with IFCR in our common quest to improve the quality of life for those affected by CDKL5 disorder,” explains Len Barker, ThinkGenetic President and Co-Founder. “This partnership will help both organizations reach more people than we could alone, increasing the support for these families.”
ThinkGenetic will support in boosting awareness of CDLK5 disorders through its resources for patients and families, while providing a platform for IFCR supporters to contribute toward the funding of research through their interaction with the ThinkGenetic.com site. Additionally, when IFCR supporters register at ThinkGenetic.com, they earn ThinkPoints that can be directed to IFCR for cash donations.
“The International Foundation for CDKL5 Research is delighted to partner with ThinkGenetic to expand our community resources for all stakeholders touched by CDKL5,” says Amanda Jaksha, IFCR Treasurer. “We are committed to collaborating with a variety of organizations that share our dedication to raising awareness, providing disease specific education, and supporting those affected by CDKL5.”
About the ThinkGenetic Advocacy Partner Program: ThinkGenetic enters into Advocacy Partner agreements with organizations, support groups, and charities to share information, increase public awareness of genetic conditions and provide trustworthy resources to those living with or caring for someone with a genetic disorder. Learn more and view current partners at news.thinkgenetic.com/advocacy-partner-program or email mailto:firstname.lastname@example.org for information about enrollment in the program.