The Canadian Fabry Association (CFA), a non-profit organization raising awareness and educating the public about Fabry disease, has joined ThinkGenetic’s Advocacy Partner program. The CFA is committed to improving the lives of those who live with and are affected by Fabry disease in Canada.
Fabry disease is one of several dozen lysosomal storage disorders (LSDs) that interfere with the body’s ability to break down specific fatty substances (fatty acids). This can become a major problem in parts of the body that depend on small blood vessels, since the build-up – or “storage” – of fatty acids can clog these vessels. The areas that are most affected by small blood vessels clogging are the kidneys, heart, nervous system, skin and inner ear.
“The CFA does a terrific job of getting the latest information on Fabry disease to their community,” said ThinkGenetic President Len Barker. “The CFA-ThinkGenetic partnership opens up a two-way flow of information that will help patients with Fabry disease and their families on both sides of the Canada-U.S. border and worldwide.”
Made up of those who live with and are affected by Fabry disease, the CFA encourages and supports research into the causes, treatment, and management of Fabry disease. Most importantly, the CFA arranges for, coordinates, and increases the facilities available for diagnosis, consultation and treatment of those with Fabry disease.
Julia Alton, the CFA’s Executive Director, stated that “The CFA is proud to collaborate and join the ThinkGenetic Advocacy Partner Program. The partnership will allow us to increase awareness of both organizations and the educational resources available to the community. “
As part of the ThinkGenetic Advocacy Partnership program, when CFA supporters register at ThinkGenetic.com, they earn ThinkPoints that can be donated to CFA in the form of a monetary donation each month.
About the ThinkGenetic Advocacy Partner Program: ThinkGenetic enters into Advocacy Partner agreements with organizations, support groups and charities to share information, increase public awareness of genetic conditions and provide trustworthy resources to those living with or caring for someone with a genetic disorder. Learn more and view current partners at news.thinkgenetic.com/advocacy-partner-program or email firstname.lastname@example.org for information about enrollment in the program.