All Things Kabuki became one of the earliest ThinkGenetic Advocacy Partners when it joined the Advocacy Partner Program in September 2016. Today, we mark Kabuki Syndrome Awareness Day (#kabukisyndrome) by officially recognizing All Things Kabuki for the great work they do for individuals and families with Kabuki syndrome, and express gratitude that we can call them an Advocacy Partner.
“The team at ThinkGenetic gets a great deal of satisfaction from creating trustworthy, actionable answers to questions about living with genetic disorders and making them freely available to the public,” said ThinkGenetic President Len Barker. “Partnering with All Things Kabuki gives us a valuable place to refer people to that are looking for others living with Kabuki syndrome, and it gives the community a source for helpful answers about Kabuki syndrome from experienced genetic counselors on the ThinkGenetic team.”
Kabuki syndrome is a rare genetic condition in people across the world that causes a variety of symptoms, including mild to moderate intellectual impairment, growth delays, low muscle tone, feeding difficulties, heart defects, cleft palate, skeletal abnormalities, vision and hearing impairments, communication delays and autistic-like behaviors.
All Things Kabuki’s mission is to raise awareness, incite research, and support individuals and families with Kabuki syndrome. They are passionate about supporting family and bringing people together worldwide who are touched by Kabuki syndrome.
“We are always grateful for the opportunity to partner with other organizations that are equally passionate about advocacy.”, said Rene King, President and Founder of All Things Kabuki. “It is our hope that as we continue our mission to raise awareness for Kabuki Syndrome, families affected by this rare disorder know they have a place to turn, people to talk to and resources to help.”
As part of the ThinkGenetic Advocacy Partnership program, when All Things Kabuki supporters register at ThinkGenetic.com, they earn ThinkPoints that can be donated to All Things Kabuki in the form of a monetary donation each month.
About the ThinkGenetic Advocacy Partner Program: ThinkGenetic enters into Advocacy Partner agreements with organizations, support groups, and charities to share information, increase public awareness of genetic conditions and provide trustworthy resources to those living with or caring for someone with a genetic disorder. Learn more and view current partners at news.thinkgenetic.com/advocacy-partner-program or email firstname.lastname@example.org for information about enrollment in the program.