In a move to help educate pregnant women and those of childbearing age learn about congenital cytomegalovirus (CMV), ThinkGenetic and the National CMV Foundation have entered into an Advocacy Partner agreement.
Congenital CMV is the most common viral infection that infants are born with in the United States, resulting in approximately 6,000 babies per year developing permanent medical abnormalities or disabilities. Because CMV is a silent disease – meaning most people who are infected have no signs or symptoms – a mother with CMV is likely unaware she has the infection during her pregnancy. Knowing a mother has CMV during a pregnancy means that extra care can be taken to keep her, the pregnancy, and her new baby healthy.
“Although congenital CMV is not a genetic condition, this partnership is important to ThinkGenetic, all pregnant women, and their newborn children” said ThinkGenetic President Len Barker. “Mothers with questions about pregnancy with a CMV infection may visit ThinkGenetic.com as their first online stop in a search for trusted information. It is very important to us to have a partner like the National CMV Foundation to refer our visitors to when they are looking for others that share their personal experience.”
Congenital CMV touches too many and is discussed by too few. The National CMV Foundation is a network of CMV parents and advocates who work to inform and educate communities impacted by this devastating virus, with the goal to eliminate congenital CMV for the next generation.
“We are excited about this opportunity with ThinkGenetic,” said National CMV Foundation President Kristen Spytek. “There is an overwhelming amount of information bombarding pregnant women every single day. Through this partnership, we hope to increase our reach so we may better educate women of childbearing age about congenital CMV, as well as provide access to resources for those impacted.”
By jointly promoting educational materials about congenital CMV, ThinkGenetic and National CMV Foundation will empower women, parents, and families. As part of the Advocacy Partner program, when supporters of the National CMV Foundation register at ThinkGenetic.com, they earn ThinkPoints that can be donated to the National CMV Foundation in the form of a monetary donation each month.
About the ThinkGenetic Advocacy Partner Program: ThinkGenetic enters into Advocacy Partner agreements with organizations, support groups and charities to share information, increase public awareness of genetic conditions and provide trustworthy resources to those living with or caring for someone with a genetic disorder. Learn more and view current partners at news.thinkgenetic.com/advocacy-partner-program or email firstname.lastname@example.org for information about enrollment in the program.