ThinkGenetic enters into Advocacy Alliance agreements with organizations, support groups and charities in order to share information, expand the application’s expertise, increase public awareness of conditions and provide resources to those living with or caring for someone with a genetic disease or disorder.
- All Things Kabuki, Inc. (http://www.allthingskabuki.org/)
- Association for Creatine Deficiencies (https://creatineinfo.org/)
- Beyond Achondroplasia (http://beyondachondroplasia.org/)
- Beyond Batten Disease Foundation (https://beyondbatten.org/)
- Born a Hero (http://www.bornahero.org/)
- Bridge The Gap – SYNGAP Education and Research Foundation (http://www.bridgesyngap.org)
- Bright Pink (https://www.brightpink.org/)
- Canadian Fabry Association (http://www.fabrycanada.com/)
- Canavan Disease Research (https://www.canavandisease.org/)
- C22C – Chromosome 22 Central, Inc (http://www.c22c.org)
- Children’s Craniofacial Association (http://www.ccakids.com)
- CMTC-OVM (http://www.cmtc.nl/en)
- cureCADASIL Association (http://www.cadasilassociation.org/)
- Cutis Laxa Internationale (http://www.cutislaxa.org)
- Fight Colorectal Cancer (https://fightcolorectalcancer.org/)
- FMF & AID Global Association (https://www.fmfandaid.org/)
- FSIG – Fabry Support and Information Group (http://www.fabry.org)
- Genetic Alliance (http://www.geneticalliance.org/)
- HCU Network America (http://hcunetworkamerica.org/)
- HCU Network Australia (https://www.hcunetworkaustralia.org.au/)
- HSAN1E Society (https://hsan1esociety.org)
- Huntington’s Disease Society of America (http://hdsa.org/)
- International Foundation for CDKL5 Research (https://www.cdkl5.com)
- Klippel-Feil Syndrome Freedom (facebook.com/KlippelFeilSyndromeFreedom)
- KrabbeConnect (https://krabbeconnect.org/)
- LivingLFS (http://www.livinglfs.org/)
- MyMolarPregnancy.com (MyMolarPregnancy.com)
- National CMV Foundation (https://www.nationalcmv.org)
- NFDF – National Fabry Disease Foundation (http://www.fabrydisease.org)
- National Gaucher Foundation (http://www.gaucherdisease.org/)
- Neuromuscular Disease Foundation (http://curehibm.org/)
- No Stomach For Cancer (https://www.nostomachforcancer.org/)
- Organic Acidemia Association (http://www.oaanews.org/)
- PolyPeople (http://www.polypeople.net/)
- PPMD – Parent Project Muscular Dystrophy (parentprojectmd.org)
- Rare Disease Foundation (https://www.rarediseasefoundation.org)
- Rare is Everywhere (http://rareiseverywhere.com)
- Rare Genomics Institute (http://www.raregenomics.org/)
- Sharsheret (http://sharsheret.org/)
- The Coalition for Hemophilia B (http://hemob.org)
- TLOAF – The Legacy of Angels Foundation (http://www.tloaf.org)
- TSC Alliance (https://www.tscalliance.org/)
- Usher Syndrome Coalition (https://www.usher-syndrome.org/)
To learn more about becoming an Advocacy Partner please email advocacy@thinkgenetic.com. To submit an application to join our Advocacy Alliance click here.