“Thanks for the genetic testing results, but what do they MEAN?!!” could be the unifying cry of thousands of patients and family members after receiving genetic test results that show… CONTINUE
Connecting, Collaborating, and Activating at the Vibrant 2017 RARE Patient Advocacy Summit
While many of our ThinkGenetic teammates helped others “harness their inner power” at the National Society of Genetic Counselors Annual Conference in Columbus, Ohio, ThinkGenetic CEO, Dave Jacob and I… CONTINUE
Banging on the Newborn Screening Testing Ceiling: Unsung Hero-Advocates in Genetics
Can you hear that faint thumping? The one that syncs with your heart when you lie quietly in bed after the kids are finally asleep after B-B-B (Bath-Book-Bed)? That is… CONTINUE
A Very Special Audience: The Pope Focuses Attention on Huntington’s Disease and Rare Genetic Conditions
Too often, due to a complex combination of fear, stigma, financial, and family implications, individuals affected by devastating rare genetic conditions like Huntington’s disease have been marginalized and misunderstood. Today,… CONTINUE