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About Dawn Laney, MS, CGC, CCRC | ThinkGenetic Co-Founder

As a Founder of ThinkGenetic, Inc., Dawn Laney is responsible for directing the inclusion of genetic disease information and making important connections to those in the genetic field. Laney received her Master’s degree in Human Genetics/Genetic Counseling from Sarah Lawrence College in 1999 and her Board certification from the American Board of Genetic Counseling in 2002. Since joining the Emory Division of Medical Genetics in 2002, Laney has been involved in follow-up of abnormal metabolic newborn screening for the state of Georgia, development and management of a genetic infusion center, and lysosomal storage disease clinical care and research. She is currently the Program Leader for the Emory Lysosomal Storage disease center and Director of the Emory Genetic Clinical Trial Center. She serves on the Emory biomedical Institutional Review Board (IRB) committee and is instructor for the Developmental Biology and Human Malformation course at Emory University. In 2016, she was awarded an NORD Rare Impact Honoree. She has published six books about communicating information about genetic conditions to kids and their families.

VUS Detectives: Recognizing the Individuals Who Seek to Understand Genomic Variants

October 22, 2017 Dawn Laney, MS, CGC, CCRC | ThinkGenetic Co-Founder 1 Comment

“Thanks for the genetic testing results, but what do they MEAN?!!” could be the unifying cry of thousands of patients and family members after receiving genetic test results that show… CONTINUE

Filed Under: Education Tagged With: ClinVar, Dawn Laney, Emory University, Find My Variant, Free the Data, InformedDNA, Karmen Trzupek, Morgan Simmons, PROMPT, Retinitis pigmentosa, Simons VIP, University of Washington, variant, variant of uncertain significance, VOUS, VUS

Connecting, Collaborating, and Activating at the Vibrant 2017 RARE Patient Advocacy Summit

September 28, 2017 Dawn Laney, MS, CGC, CCRC | ThinkGenetic Co-Founder Leave a Comment

While many of our ThinkGenetic teammates helped others “harness their inner power” at the National Society of Genetic Counselors Annual Conference in Columbus, Ohio, ThinkGenetic CEO, Dave Jacob and I… CONTINUE

Filed Under: Events Tagged With: advocacy, Dave Jacob, Dawn Laney, Deborah Katz, Dekel Gelbman, Face2Gene, FDNA, genetic counselor, genetic disease, Global Genes, Rare Disease, summit, SymptomMatcher

Banging on the Newborn Screening Testing Ceiling: Unsung Hero-Advocates in Genetics

August 30, 2017 Dawn Laney, MS, CGC, CCRC | ThinkGenetic Co-Founder 4 Comments

Can you hear that faint thumping? The one that syncs with your heart when you lie quietly in bed after the kids are finally asleep after B-B-B (Bath-Book-Bed)? That is… CONTINUE

Filed Under: Education Tagged With: Dawn Laney, genetic condition, genetic disease, genetic disorder, genetic testing, newborn screening, RUSP

A Very Special Audience: The Pope Focuses Attention on Huntington’s Disease and Rare Genetic Conditions

May 18, 2017 Dawn Laney, MS, CGC, CCRC | ThinkGenetic Co-Founder 2 Comments

Too often, due to a complex combination of fear, stigma, financial, and family implications, individuals affected by devastating rare genetic conditions like Huntington’s disease have been marginalized and misunderstood. Today,… CONTINUE

Filed Under: News Tagged With: Austedo, Dawn Jacob Laney, Dawn Laney, HD, HDSA, Huntington's disease, Huntington’s Disease Society of America, Louise Vetter, Pope Francis, Pope Francis I, Rare Disease, Rare Genetic Conditions

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