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People Live When People Give – National Blood Donor Month

January 27, 2022 Jessica Dronen, MS, CGC Leave a Comment

January is National Blood Donor Month!  Awareness of blood donation is extra important this year as the United States and countries around the world are currently facing historic blood shortages…. CONTINUE

Filed Under: Advocacy Tagged With: American Red Cross, blood crisis, blood donation, blood shortage, blood transfusion, blood type, genetic blood disorders, genetic counseling, Jessica Dronen, National Blood Donor Month, OneBlood, sickle cell disease, ThinkGenetic

Taking a Closer Look at Advocacy- The SynGAP1 Research Fund

January 11, 2022 Jessica Dronen, MS, CGC Leave a Comment

Collaboration, Transparency, Urgency ThinkGenetic is honored to partner with many incredible organizations, each with their own stories, struggles and triumphs. This month, we are taking a moment to highlight the… CONTINUE

Filed Under: Advocacy, Advocacy Alliance, Partners Tagged With: Advocacy Alliance, Dawn Laney, Mike Graglia, SYNGAP, SynGAP Research Fund, SYNGAP1

Healthy Communities Healthy Babies – It’s National Birth Defects Awareness Month!

January 10, 2022 Jessica Dronen, MS, CGC Leave a Comment

January is National Birth Defects Awareness Month (NBDAM)!  Did you know that 1 in 33 babies born in the United States has a birth defect? That’s about one baby born… CONTINUE

Filed Under: Advocacy, Education Tagged With: birth defects, CDC, Centers for Disease Control and Prevention, cleft lip, cleft palate, club foot, Find a Genetic Counselor, MotherToBaby, National Birth Defects Awareness Month, National Birth Defects Prevention Network, NBDAM, NBDPN, spina bifida, The National Society of Genetic Counselors

‘Tis the Season of Giving- Tips for Sharing your Health History with Family Members

December 16, 2021 Jessica Dronen, MS, CGC Leave a Comment

Family Get Together During Holidays

We at ThinkGenetic hope that you and yours have had a wonderful holiday season! We’d like to take the time to remind everyone that while you may be rushing to… CONTINUE

Filed Under: Education Tagged With: cancer screening, colon cancer, colon polyps, diabetes, Familial Hypercholesterolemia, family history, FH, genetic counselor, genetics, health history, high blood pressure, high cholesterol, inheritance, Jessica Dronen, medical information, osteoporosis, precancerous, thyroid disease

Taking a Closer Look at Advocacy – The TSC Alliance®: Hope No Matter How Complex

October 7, 2021 Jessica Dronen, MS, CGC Leave a Comment

ThinkGenetic is honored to partner with many incredible organizations, each with their own stories, struggles and triumphs. This month, we are taking a moment to highlight the work and rebranding… CONTINUE

Filed Under: Advocacy, Partners Tagged With: Dawn Laney, Educator Mentor Program, Jessica Dronen, rare genetic disease, TS Alliance, TSC, TSC Alliance, TSC clinics, Tuberous sclerosis, Tuberous sclerosis complex, tumors

Familial Hypercholesterolemia – Are you hiding in plain sight?

September 23, 2021 Jessica Dronen, MS, CGC 1 Comment

September is National Cholesterol Education Month! We’d like to take this time to highlight a common genetic disorder that is highly underdiagnosed – Familial Hypercholesterolemia. What is Familial Hypercholesterolemia (FH)?… CONTINUE

Filed Under: Advocacy Tagged With: #FHCantWait, #KnowFH, CAD, CASCADE FH® Registry, coronary artery disease, diagnosis, Familial Hypercholesterolemia, FH, FH Awareness Day, FH Foundation, FH Global Summit, FIND FH®, genetic disorder, Jessica Dronen, LDL, National Cholesterol Education Month, ThinkGenetic

Rare Chromosome Disorder Awareness Day Book Spotlight: “Raising the Goddess of Spring” by Stephanie Rese

June 24, 2021 Jessica Dronen, MS, CGC Leave a Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist Today is Rare Chromosome Disorder Awareness Day! In honor of that we have a special edition of ThinkGenetic’s book… CONTINUE

Filed Under: Advocacy, Education, Genetic Book Club Tagged With: #RareChromo, #rarechromoday, #shinebrighttogether, #UniqueNotAlone, Beverly Searle, C22C, chromosome, Chromosome 22 Central, chromosome disorder, DNA, Emanuel Syndrome, genetics, inheritance, Jessica Dronen, Melissa Carter, Murney Runholm, parenting, Raising the Goddess of Spring, Rare Chromosome and Gene Disorder Support Group, rare chromosome disorder awareness day, Stephanie Rese, UNIQUE

June book spotlight: “Run to the Light” by Laura King Edwards

June 4, 2021 Jessica Dronen, MS, CGC Leave a Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist Welcome to ThinkGenetic’s June genetic book spotlight!  In this series we combine a review of one or more books… CONTINUE

Filed Under: Advocacy, Education, News Tagged With: Batten disease, Batten Disease Support and Research Association, BBDF, BDSRA, Beyond Batten Foundation, book club, Family Education Conference, International Batten Disease Awareness Day, Jessica Dronen, Laura King Edwards, neuronal ceroid lipofuscinoses, Run to the Light, Sibling Leadership Network, Sibling Leadership Network Conference, Sibling Support Project, SibShops

May Book Spotlight: “Salt in My Soul: An Unfinished Life” by Mallory Smith

May 7, 2021 Jessica Dronen, MS, CGC Leave a Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist, ThinkGenetic Welcome to ThinkGenetic’s May genetic book spotlight!  In this series we combine a review of one or more… CONTINUE

Filed Under: Education, Genetic Book Club Tagged With: #CFawareness, #CFAwarenessMonth, #CysticFibrosis, book club, cystic fibrosis, Jessica Dronen

April Book Spotlight: “Can I Play if I Have Fabry?” by Dawn Laney

April 8, 2021 Jessica Dronen, MS, CGC 1 Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist, ThinkGenetic Welcome to ThinkGenetic’s first genetic book spotlight! Starting this month we will be pairing a review of one… CONTINUE

Filed Under: Education, Genetic Book Club Tagged With: book club, Can I Play if I Have Fabry, childrens book, Dawn Jacob, Dawn Jacob Laney, Fabry, Fabry disease, Fabry Support and Information Group, FSIG, Jessica Dronen, National Fabry Disease Foundation, NFDF

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