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International Umbrella Organization Joins ThinkGenetic Advocacy Partner Program

June 27, 2017 Ruth O'Keefe Leave a Comment

FMF & AID (familial Mediterranean fever and autoinflammatory diseases) Global Association has become an official ThinkGenetic Advocacy Partner, continuing the ThinkGenetic expansion worldwide. “Genetic conditions know no boundaries, and neither… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, autoinflammatory disease, awareness, Familial Mediterranean Fever, FMF & AID, FMF & AID Global Association, Len Barker, Malena Vetterli

Webinar: Guideline Development for Non‐Physician Clinicians with G‐I‐N NA

June 19, 2017 Ruth O'Keefe 2 Comments

This month, ThinkGenetic’s new Vice President of Communications and Advocacy, Deepti Babu, MS, CGC will be sharing her experience with the National Society of Genetic Counselors’ (NSGC’s) Practice Guidelines Committee… CONTINUE

Filed Under: Events Tagged With: clinician, Deepti Babu, G‐I‐N NA, genetic counselor, guidelines, Iris Tam, Lucia Constantini, nurse, online education, pharmacists, webinar

ThinkGenetic Announces Deepti Babu, MS, CGC as Vice President of Communications and Patient Advocacy

June 19, 2017 Ruth O'Keefe Leave a Comment

ThinkGenetic is happy to announce the hire of certified genetic counselor and medical writer, Deepti Babu, to Vice President of Communications and Patient Advocacy. She will have the primary responsibility… CONTINUE

Filed Under: News Tagged With: communication, Deepti Babu, GAGC, genetic condition, genetic counselor, genetic disease, hire, Len Barker, NSGC, patient advocacy

Visionary Greg Grabowski, MD Joins ThinkGenetic’s Board of Directors

June 5, 2017 Ruth O'Keefe Leave a Comment

ThinkGenetic, Inc., a provider of direction for those living with genetic diseases, today announced that human genetics visionary and successful biotech leader Greg Grabowski, MD has joined its Board. ThinkGenetic,… CONTINUE

Filed Under: News Tagged With: Greg Grabowski

TRNDS Panel: Virtual Visits to Facilitate the Conduct of Feasible Clinical Trials

May 8, 2017 Ruth O'Keefe Leave a Comment

ThinkGenetic CEO and Founder, Dave Jacob, will be a part of an impressive panel this week, discussing ways in which technology can help to facilitate clinical trials participation. The Technology &… CONTINUE

Filed Under: Events, News Tagged With: clincial trial, Dave Jacob, event, Technology & Rare Neurological Diseases Symposium, TRNDS

Thank You GAGC – A follow-up to the 5th Annual Education Meeting

April 24, 2017 Ruth O'Keefe Leave a Comment

GAGC 2017

Thank you for stopping by and chatting with us. We appreciate all the enthusiasm and support for our mission. Last week was such a wonderful opportunity to see all our… CONTINUE

Filed Under: Events Tagged With: events, GAGC2017, genetic counseling, Georgia Society of Genetic Counselors

Thank you Phoenix! ACMG 2017 Raffle Winners Announced

April 10, 2017 Ruth O'Keefe Leave a Comment

ACMG 2017 - Daniel Jacob - ThinkGenetic

Thank you for stopping by and chatting with us at the 2017 ACMG Annual Clinical Genetics Meeting. The sessions we attended and the conversations we had were so enlightening and… CONTINUE

Filed Under: Events Tagged With: #ACMGMtg17, ACMG

How a Social Post Forged a Partnership with HCU Network America

March 17, 2017 Ruth O'Keefe Leave a Comment

After highlighting Homocystinuria, an inherited disorder where the body is unable to process some of the building blocks of the body, in the Genetic Condition of the Day campaign, ThinkGenetic… CONTINUE

Filed Under: News, Partners Tagged With: Danae' Bartke, geneti condition, HCU Network America, Homocystinuria, Len Barker, partner, social awareness

Peter Wilkerson Promoted to ThinkGenetic Vice President, Application Design and Development

February 26, 2017 Ruth O'Keefe Leave a Comment

Peter Wilkerson - ThinkGenetic

ThinkGenetic, Inc. is excited to announce the promotion of Peter Wilkerson to Vice President, Application Design and Development. In his new role Peter will continue designing and developing applications which… CONTINUE

Filed Under: News Tagged With: leadership team, Peter Wilkerson, ThinkGenetic, Vice President

ThinkGenetic to Attend and Exhibit at 13th Annual WORLDSymposium™

January 27, 2017 Ruth O'Keefe Leave a Comment

ThinkGenetic is excited to be heading to sunny San Diego, California this February to participate in the annual Lysosomal Disease Network WORLDSymposium.  The Symposium is an interdisciplinary forum to explore,… CONTINUE

Filed Under: Events Tagged With: alpha mannosidosis, Carol Ogg, Dave Jacob, Dawn Laney, diagnosis, Fabry disease, Gaucher disease, Krabbe disease, LSD, lysosomal disease, lysosomes, Morgan Simmons, Mucolipidosis, Mucopolysaccharidosis, neuronal ceroid lipfuscinosis, pompe disease, Ruth O'Keefe, Sandhoff disease, Tay-sachs disease, WORLDSymposium, WORLDSyposia

ThinkGenetic Signs First International Advocacy Partner

December 6, 2016 Ruth O'Keefe Leave a Comment

France based support group, Cutis Laxa Internationale, becomes first International ThinkGenetic Advocacy Partner Cutis Laxa Internationale became an official ThinkGenetic Advocacy Partner today, the first advocacy partner based outside the… CONTINUE

Filed Under: News, Partners Tagged With: advocacy, advocacy group, advocacy partner, Cutis Laxa, Cutis Laxa Internationale, Dave Jacob, Marie-Claude Boiteux, Partners, partnership, Ruth O'Keefe, support group, ThinkGenetic

First International SYNGAP1 Conference and Bridge the Gap – SYNGAP ERF

November 3, 2016 Ruth O'Keefe Leave a Comment

As ThinkGenetic outreach coordinators so much of what we do includes hearing the stories of those with genetic conditions and meeting incredible advocates. One such person our team recently met was Monica Weldon,… CONTINUE

Filed Under: Events, News Tagged With: Bridge the Gap-SYNGAP, Dawn Jacob Laney, Monica Weldon, Ruth O'Keefe, SYNGAP, webinar

ThinkGenetic to Sponsor 2016 USC Genetic Counseling Fall Symposium on November 11

November 2, 2016 Ruth O'Keefe Leave a Comment

ThinkGenetic is very excited to be a sponsor at the upcoming 2016 Genetic Counseling Fall Symposium in Columbia, South Carolina on November 11, 2016. Focusing on the needs of genetic counselors, geneticists,… CONTINUE

Filed Under: Events, News Tagged With: breast cancer, cancer genetics, CGC, Dawn Jacob Laney, event, exome, gene therapy, genetic counselor, Haiyan Fu, hypermutations, Janice Edwards, Julianne O’Daniel, Kelly East, LSD, Magdalena Walkiewicz, National Society of Genetic Counselors, newborn screening, NSGC, ovarian cancer, Quinn Stein, Ruth O'Keefe, Symposium, University of South Carolina, Uri Tabori, USCGC

ThinkGenetic Extends Handshake to the National Gaucher Foundation

October 6, 2016 Ruth O'Keefe Leave a Comment

Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease In a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with… CONTINUE

Filed Under: News, Partners Tagged With: education, Gaucher disease, Len Barker, National Gaucher Foundation, NGF, Partners, Ruth O'Keefe

Protected: ThinkGenetic Continues to Shorten Time to Diagnosis with Help from Alexion Pharmaceuticals

September 29, 2016 Ruth O'Keefe Leave a Comment

There is no excerpt because this is a protected post.

Filed Under: News, Partners

Laney Recruits Genetic Counselors to Help Fix Genetic Information on the Internet

September 28, 2016 Ruth O'Keefe Leave a Comment

For nearly twenty years, genetic counselor Dawn Jacob Laney, MS, CGC, CCRC, has scoured the internet for information related to her passion – genetic diseases and disorders. Her first foray… CONTINUE

Filed Under: News Tagged With: Dawn Laney, Emory University, genetic counselors, genetic disease, genetic sounseling, Global Genes, IBM Watson, Len Barker, NSGC, Rare Disease, Ruth O'Keefe, Sarah Lawrence College, ThinkGenetic

35th Annual Education Conference by National Society of Genetic Counselors

September 14, 2016 Ruth O'Keefe Leave a Comment

This month, ThinkGenetic is happy to be attending and exhibiting at the 35th Annual Education Conference by the National Society of Genetic Counselors (NSGC) in Seattle. This event “focuses specifically… CONTINUE

Filed Under: Events Tagged With: AEC, genetic counselor, NSGC, Ruth O'Keefe

6th Annual Fabry Family Medical Conference

September 6, 2016 Ruth O'Keefe Leave a Comment

Featured - NFDF

On September 8-9, 2016 in Greensboro, North Carolina the National Fabry Disease Foundation (NFDF) will be hosting it’s annual Fabry Family Medical Conference. An important event for all individuals with Fabry disease… CONTINUE

Filed Under: Events, News Tagged With: Dave Jacob, Dawn Laney, Emory University, Fabry, Fabry disease, Fabry Family Medical Conference, genetic counselor, National Fabry Disease Foundation, NFDF, Ruth O'Keefe

ThinkGenetic Joins Forces with C22C

August 30, 2016 Ruth O'Keefe 2 Comments

C22C Master Logo small

ThinkGenetic is pleased to announce the advocacy partnership with Chromosome 22 Central, Inc., also known as C22C. Chromosome 22 Central is a parent powered support organization founded in 1997 to… CONTINUE

Filed Under: News, Partners Tagged With: 22q11.2 syndrome, C22C, Cat Eye Syndrome, Chromosome 22 Central, chromosome 22 disorders, Emanuel Syndrome, genetic health, Len Barker, Mosaic Trisomy 22, Murney Rinholm, partnership, Phelan-McDermid Syndrome, Ruth O'Keefe

Commissioning IBM Watson™ for Genetic Disease

August 15, 2016 Ruth O'Keefe 3 Comments

Sometimes your next business adventure comes from the most unlikely of situations. Like many small business owners, Len Barker found himself diving into a new pool of opportunity after being… CONTINUE

Filed Under: News Tagged With: Dave Jacob, genetic disease, IBM Watson, Len Barker, supercomputer, ThinkGenetic, Virginia

ThinkGenetic to Exhibit 15th International Fragile X Conference

July 12, 2016 Ruth O'Keefe Leave a Comment

Coming to San Antonio, ThinkGenetic will be attending the 15th International Fragile X Conference on July 20-24, 2016. ThinkGenetic champions will exhibit at the event to introduce ThinkGenetic to the Fragile X… CONTINUE

Filed Under: Events Tagged With: conference, Fragile X, FXPOI, FXS, FXTAS, National Fragile X Foundation, Ruth O'Keefe, session

New Partnership with Genetic Alliance Helps Expands Healthcare Resources for Genetic Disease Patients Online

July 11, 2016 Ruth O'Keefe Leave a Comment

Largest Non-Profit Genetic Health Advocacy Organization, Genetic Alliance, Joins in Partnership with ThinkGenetic to Empower Patients In a time when “genetics”, “genomes”, and “genes” are becoming a daily topic of… CONTINUE

Filed Under: News, Partners Tagged With: Genetic Alliance, genetic community, genetic disease, genetic health, partnership, Ruth O'Keefe, ThinkGenetic

Partner Agreement with FSIG will Help Get Answers to the Fabry Disease Community

June 28, 2016 Ruth O'Keefe Leave a Comment

In a showing of mutual respect and appreciation, Fabry Support & Information Group (FSIG) signed an Advocate Partnership Agreement with ThinkGenetic. “We are truly thrilled to partner with ThinkGenetic and… CONTINUE

Filed Under: Partners Tagged With: advocacy, Dawn Jacob Laney, Dawn Laney, FLGenomics, FSIG, genetic disease, genetic disorder, GenomicsFest, Jack Johnson, partnership, Ruth O'Keefe, ThinkGenetic

ThinkGenetic is Open for Individual Pledges on Kickstarter for 30 Days

June 15, 2016 Ruth O'Keefe Leave a Comment

For the next thirty days, ThinkGenetic is offering a chance for our champions and advocates to support the project on Kickstarter! That’s right, for as little as $25 you can… CONTINUE

Filed Under: Events, News, Updates Tagged With: kickstarter, pledge, Ruth O'Keefe

ThinkGenetic Founder, Dawn Laney, to be honored at 2016 Rare Impact Awards on May 17th

April 13, 2016 Ruth O'Keefe

Dawn Laney at NORD Rare Impact Awards

Coming this May, NORD is hosting the 2016 Rare Impact Awards to bring together the rare disease community and to honor and celebrate outstanding achievements. During the event NORD will recognize the… CONTINUE

Filed Under: Events, News Tagged With: #rareimpact, Dawn Laney, NORD, Rare Impact Award, Ruth O'Keefe, ThinkGenetic

Protected: UK-Based PolyPeople Joins ThinkGenetic in Raising Awareness of Rare Cancers

March 28, 2016 Ruth O'Keefe Leave a Comment

There is no excerpt because this is a protected post.

Filed Under: Partners Tagged With: advocacy partnership, Familial adenomatous polyposis, FAP, PolyPeople, rare cancer, support group, ThinkGenetic

ThinkGenetic to Exhibit with Emory Genetics Laboratory at WORLDSymposium™

February 10, 2016 Ruth O'Keefe

ThinkGenetic, Inc., is proud to be exhibiting alongside Emory Genetics Laboratory at the Manchester Grand Hyatt San Diego the week of February 29 – March 4, 2016 to demonstrate the beta of ThinkGenetic. This… CONTINUE

Filed Under: Events, News Tagged With: Dave Jacob, Dawn Laney, Emory Genetics Laboratory, Ruth O'Keefe, ThinkGenetic, WORLDSymposium

Boston Globe Article: “Wrong or late diagnosis likely to affect most Americans”

September 23, 2015 Ruth O'Keefe 2 Comments

In the article “Wrong or late diagnosis likely to affect most Americans” from September 23rd, Lena H. Sun touches on some key information uncovered in an report from the Institute of… CONTINUE

Filed Under: News Tagged With: Boston Globe, Brookings Institution’s Center for Health Policy, diagnosis, diagnostic error, health care error, Institute of Medicine, Lena H. Sun, National Academy of Sciences, National Quality Forum, To Err is Human

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