France based support group, Cutis Laxa Internationale, becomes first International ThinkGenetic Advocacy Partner Cutis Laxa Internationale became an official ThinkGenetic Advocacy Partner today, the first advocacy partner based outside the… CONTINUE
Lynch Syndrome Patients Receive V.P. Biden’s Attention
Cancer Moonshot is a new initiative led by Vice President Joe Biden that aims to make additional therapies available to more patients, while also improving prevention and early detection. The program,… CONTINUE
First International SYNGAP1 Conference and Bridge the Gap – SYNGAP ERF
As ThinkGenetic outreach coordinators so much of what we do includes hearing the stories of those with genetic conditions and meeting incredible advocates. One such person our team recently met was Monica Weldon,… CONTINUE
ThinkGenetic to Sponsor 2016 USC Genetic Counseling Fall Symposium on November 11
ThinkGenetic is very excited to be a sponsor at the upcoming 2016 Genetic Counseling Fall Symposium in Columbia, South Carolina on November 11, 2016. Focusing on the needs of genetic counselors, geneticists,… CONTINUE
From Submarines to Genetic Diseases, Finding Answers Across the Decades
The year is 1983. I had just finished Navy Nuclear Power School, Ronald Reagan was president and the fledgling National Organization for Rare Disorders (NORD) helped pass the Orphan Drug… CONTINUE
ThinkGenetic Extends Handshake to the National Gaucher Foundation
Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease In a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with… CONTINUE
Protected: ThinkGenetic Continues to Shorten Time to Diagnosis with Help from Alexion Pharmaceuticals
There is no excerpt because this is a protected post.
Laney Recruits Genetic Counselors to Help Fix Genetic Information on the Internet
For nearly twenty years, genetic counselor Dawn Jacob Laney, MS, CGC, CCRC, has scoured the internet for information related to her passion – genetic diseases and disorders. Her first foray… CONTINUE
Why My Kindred Spirit is a Rock Star
At first glance, it may not seem Austin Carlile, the front-man of the metal-core band Of Mice & Men and I have much in common. We grew up about 100… CONTINUE
6th Annual Fabry Family Medical Conference
On September 8-9, 2016 in Greensboro, North Carolina the National Fabry Disease Foundation (NFDF) will be hosting it’s annual Fabry Family Medical Conference. An important event for all individuals with Fabry disease… CONTINUE
ThinkGenetic Joins Forces with C22C
ThinkGenetic is pleased to announce the advocacy partnership with Chromosome 22 Central, Inc., also known as C22C. Chromosome 22 Central is a parent powered support organization founded in 1997 to… CONTINUE
Commissioning IBM Watson™ for Genetic Disease
Sometimes your next business adventure comes from the most unlikely of situations. Like many small business owners, Len Barker found himself diving into a new pool of opportunity after being… CONTINUE
New Partnership with Genetic Alliance Helps Expands Healthcare Resources for Genetic Disease Patients Online
Largest Non-Profit Genetic Health Advocacy Organization, Genetic Alliance, Joins in Partnership with ThinkGenetic to Empower Patients In a time when “genetics”, “genomes”, and “genes” are becoming a daily topic of… CONTINUE
ThinkGenetic Father Hopes to Revolutionize Genetic Information on the Internet
Like many other people with a genetic disease, Dave Jacob did not learn that his childhood heart defect was related to an underlying genetic mutation until it was uncovered he… CONTINUE
ThinkGenetic is Open for Individual Pledges on Kickstarter for 30 Days
For the next thirty days, ThinkGenetic is offering a chance for our champions and advocates to support the project on Kickstarter! That’s right, for as little as $25 you can… CONTINUE
Frequently Asked Questions: How Can Parents Be Involved?
As we spread the news about ThinkGenetic we love to chat with the community and answer any questions about our exciting site. As these questions come in we like to share… CONTINUE
ThinkGenetic Founder, Dawn Laney, to be honored at 2016 Rare Impact Awards on May 17th
Coming this May, NORD is hosting the 2016 Rare Impact Awards to bring together the rare disease community and to honor and celebrate outstanding achievements. During the event NORD will recognize the… CONTINUE
Video: Why ThinkGenetic is the Best New Innovation in Pediatric Healthcare
ThinkGenetic is a labor of love between ThinkGenetic, Inc., Emory University’s Department of Human Genetics and IBM. Supported by International Advocacy groups like The Legacy of Angels, NORD and Genetic… CONTINUE
ThinkGenetic to Exhibit with Emory Genetics Laboratory at WORLDSymposium™
ThinkGenetic, Inc., is proud to be exhibiting alongside Emory Genetics Laboratory at the Manchester Grand Hyatt San Diego the week of February 29 – March 4, 2016 to demonstrate the beta of ThinkGenetic. This… CONTINUE
ThinkGenetic Accepted to Participate in Boston’s M2D2 “Barracuda Bowl”
ThinkGenetic, Inc., is excited to announce it has been selected to pitch at the upcoming M2D2 “Barracuda Bowl” on January 27, 2016 at Mintz Levin in Boston,MA. The “Barracuda Bowl” is a… CONTINUE
Boston Globe Article: “Wrong or late diagnosis likely to affect most Americans”
In the article “Wrong or late diagnosis likely to affect most Americans” from September 23rd, Lena H. Sun touches on some key information uncovered in an report from the Institute of… CONTINUE
IBM and ThinkGenetic Sign Commercial Agreement to Use Watson
After a rigorous review of the ThinkGenetic business plan, IBM signed a commercial agreement allowing the use of Watson in the ThinkGenetic product. Using expertise in information science, library science… CONTINUE
A Historic Partnership: ThinkGenetic and Emory University School of Medicine
ThinkGenetic was created by a consortium of organizations driven by the desire to improve the lives of those living with a genetic disease. Our story begins with ThinkGenetic, Inc. co-founder, Dave… CONTINUE