Sharsheret, a national not-for-profit organization supporting young Jewish women and their families facing breast and ovarian cancer, has joined ThinkGenetic’s Advocacy Partner program. Sharsheret, Hebrew for “chain,” is the only… CONTINUE
ThinkGenetic Donates $500 to Advocacy Partner, cureCADASIL
Congratulations to ThinkGenetic Advocacy Partner, cureCADASIL, who received a donation of $500 from ThinkGenetic. The donation amount was based on converted ThinkPoints, which ThinkGenetic users accrued in August 2017. The… CONTINUE
Recent ThinkGenetic.com Condition Additions for 08/29/2017
ThinkGenetic strives to create, update, and review content regularly to ensure the information we provide is accurate, referenced, and available 24/7 to anyone searching for answers on genetic conditions and… CONTINUE
Banging on the Newborn Screening Testing Ceiling: Unsung Hero-Advocates in Genetics
Can you hear that faint thumping? The one that syncs with your heart when you lie quietly in bed after the kids are finally asleep after B-B-B (Bath-Book-Bed)? That is… CONTINUE
Genetic disease. Genetic condition. Genetic disorder. Is there a difference?
This question comes up often. To be honest, even after my training in genetic counseling, I’ve had to Google the difference between these terms not just once, but multiple times…. CONTINUE
ThinkGenetic CEO “Disruptor” to Discuss the Patient Perspective of Advancing Clinical Trials
ThinkGenetic CEO, Dave Jacob, is honored to be an invited speaker during the “Ask the Patient” discussions taking place during meals and breaks at the 7th annual DPharm: Disruptive Innovations… CONTINUE
ThinkGenetic to Preview its SymptomMatcherTM Diagnostic Aid at NSGC 36th Annual Conference
ThinkGenetic leadership is looking forward to engaging with colleagues in the field at the National Society of Genetic Counselors (NSGC) 36th Annual Conference in Columbus, Ohio to help spread the… CONTINUE
ThinkGenetic and Children’s Craniofacial Association Team Up to Build a More Inclusive World for Kids
In a show of mutual support for children and families with facial differences, Children’s Craniofacial Association (CCA) has just become a member of ThinkGenetic’s Advocacy Partner Program. The growing program… CONTINUE
ThinkGenetic, Inc. Marketing Intern
ThinkGenetic is looking for someone energetic, organized, and passionate about helping others as our marketing intern. We are a fast-paced start-up working hard to increase awareness and traffic flow to… CONTINUE
ThinkGenetic to Engage with Rare Disease Community at Global Genes’ 6th Annual RARE Patient Advocacy Summit
ThinkGenetic, Inc. is delighted to be participating in the 6th Annual RARE Patient Advocacy Summit and Partnering and Investor Forum to further its mission of empowering the rare disease community… CONTINUE
ThinkGenetic Welcomes Bright Pink to Its Advocacy Partner Program
Bright Pink®, a U.S.-based non-profit organization focused on prevention and early detection of breast and ovarian cancer in young women, has become the newest member of ThinkGenetic’s growing Advocacy Partner… CONTINUE
Care Day for Hereditary ATTR Amyloidosis Comes to Albany
Alnylam and ThinkGenetic are looking forward to another successful Care Day Event for hATTR amyloidosis in Albany, NY on the 12 of August. Come learn about topics relating to hATTR amyloidosis including: Disease… CONTINUE
How Animals Help Us Understand Genetic Disease
Did you know that more than 50% of Americans own pets? Whether they have cats, dogs, horses, birds, or tropical fish – Americans are pet lovers. And while ThinkGenetic focuses… CONTINUE
Recent ThinkGenetic.com Condition Additions for 07/30/2017
ThinkGenetic strives to create, update, and review content regularly to ensure the information we provide is accurate, referenced, and available 24/7 to anyone searching for answers on genetic conditions and… CONTINUE
Little Angels: Girls Living with Rett Syndrome
Rett syndrome is a progressive neurodevelopmental disorder that occurs in 1 of every 10,000 births worldwide and is seen almost exclusively in girls. Rett syndrome is often misdiagnosed as autism,… CONTINUE
International Umbrella Organization Joins ThinkGenetic Advocacy Partner Program
FMF & AID (familial Mediterranean fever and autoinflammatory diseases) Global Association has become an official ThinkGenetic Advocacy Partner, continuing the ThinkGenetic expansion worldwide. “Genetic conditions know no boundaries, and neither… CONTINUE
Recent ThinkGenetic.com Condition Additions for 06/23/2017
ThinkGenetic strives to create, update, and review content regularly to ensure the information we provide is accurate, referenced, and available 24/7 to anyone searching for answers on genetic conditions and… CONTINUE
Webinar: Guideline Development for Non‐Physician Clinicians with G‐I‐N NA
This month, ThinkGenetic’s new Vice President of Communications and Advocacy, Deepti Babu, MS, CGC will be sharing her experience with the National Society of Genetic Counselors’ (NSGC’s) Practice Guidelines Committee… CONTINUE
ThinkGenetic Announces Deepti Babu, MS, CGC as Vice President of Communications and Patient Advocacy
ThinkGenetic is happy to announce the hire of certified genetic counselor and medical writer, Deepti Babu, to Vice President of Communications and Patient Advocacy. She will have the primary responsibility… CONTINUE
Special Event: Care Day for Hereditary ATTR Amyloidosis in Louisiana
Join us for a live Care Day Event in New Orleans sponsored by Alnylam Pharmaceuticals and presented in partnership with ThinkGenetic. Come learn about topics relating to hATTR amyloidosis including: Disease… CONTINUE
Visionary Greg Grabowski, MD Joins ThinkGenetic’s Board of Directors
ThinkGenetic, Inc., a provider of direction for those living with genetic diseases, today announced that human genetics visionary and successful biotech leader Greg Grabowski, MD has joined its Board. ThinkGenetic,… CONTINUE
“Something Smells… Fishy”: The Use of Smell in Genetic Diagnoses
Genetic diseases can be diagnosed using a variety of methods: physical exam, personal/family medical history, or tests performed in a laboratory. But, did you know that smells can also be… CONTINUE
Genetic Condition Update for 06/02/2017
ThinkGenetic strives to create, update and review content regularly to ensure the information we provide is accurate, referenced and available 24/7 to anyone searching for answers on genetic diseases and… CONTINUE
The CF Foundation: Rebels for a Cause
So many people talk about changing the world, but then there are those like the Cystic Fibrosis Foundation who put these words into action. For decades, this nonprofit has been actively… CONTINUE
A Very Special Audience: The Pope Focuses Attention on Huntington’s Disease and Rare Genetic Conditions
Too often, due to a complex combination of fear, stigma, financial, and family implications, individuals affected by devastating rare genetic conditions like Huntington’s disease have been marginalized and misunderstood. Today,… CONTINUE
Partnership in the FDNA Year of Discovery
Not too long ago it was taught in medical school that rare diseases were just that- rare and you probably wouldn’t see a patient with a rare disease in… CONTINUE
Care Day for Hereditary ATTR Amyloidosis in Iowa
Join us for a live Care Day Event in Iowa City sponsored by Alnylam Pharmaceuticals presented in partnership with ThinkGenetic. Come learn about topics relating to hATTR amyloidosis including: Disease overview… CONTINUE
TRNDS Panel: Virtual Visits to Facilitate the Conduct of Feasible Clinical Trials
ThinkGenetic CEO and Founder, Dave Jacob, will be a part of an impressive panel this week, discussing ways in which technology can help to facilitate clinical trials participation. The Technology &… CONTINUE
How Genetic Disease Families Push Through, Move Forward and Find Answers
Such a sentiment is lived by the millions of individuals and families around the world who go through the genetic condition diagnostic odyssey. Search the news section on any rare… CONTINUE
Genetic Condition Update for Week of 04/24/2017
ThinkGenetic strives to create, update and review content regularly to ensure the information we provide is accurate, referenced and available 24/7 to anyone searching for answers on genetic diseases and… CONTINUE