FOR IMMEDIATE RELEASE
International Umbrella Organization, FMF and AID Global Association, Joins ThinkGenetic Advocacy Partner Program
SUDBURY, MA (JUNE 27, 2017) – FMF & AID (familial Mediterranean fever and autoinflammatory diseases) Global Association has become an official ThinkGenetic Advocacy Partner, continuing the ThinkGenetic expansion worldwide.
“Genetic conditions know no boundaries, and neither does ThinkGenetic’s support of organizations that help patients and their families,” said ThinkGenetic President Len Barker. “Through our partnership, the FMF & AID Global Association helps broaden our content and we point our users to the condition-specific resources that they offer worldwide.”
Swiss, German, and Austrian patients requested for FMF & AID Global Association to be established as an umbrella organization with other associations from Europe, the Middle East, and South America. Working closely with global associations, organizations and patient support groups, the organization is able to support more than 13,000 patients in 20 countries — and are still expanding.
“The main purpose of partnering with ThinkGenetic is to help with our goals of reaching as many patients as possible,” explains Malena Vetterli, Executive Director of FMF & AID Global Association. “We do this in many ways, such as helping them and their doctors understand the disease, raising awareness, advocating for them, as well as getting the necessary diagnosis and treatment. ThinkGenetic is a great platform bringing patients to the support organizations they need.”
ThinkGenetic enters into Advocacy Partner agreements with organizations, support groups and charities in order to share information, expand the application’s knowledge base, increase public awareness of genetic conditions and provide trustworthy resources to those living with or caring for someone with a genetic disorder.
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About ThinkGenetic, Inc. – ThinkGenetic aims to help patients by shortening the time to diagnosis while providing trustworthy support alongside their journey of living with a genetic condition. Using its accessible, patient-focused content created by medical specialists, ThinkGenetic engages with the genetic disease community while also creating user-driven data streams that offer valuable insights into the community’s needs. Learn more at ThinkGenetic.com.
About the FMF & AID Global Association – The FMF (Familial Mediterranean Fever) and AID (auto-inflammatory diseases) Global Association is a non-profit patient organisation, founded in Zurich, Switzerland. It also represents organised patient groups worldwide, in countries where no patient associations have been established yet. Being an umbrella organisation, enables us to leverage the power of all the affiliated associations and patient groups. Between our patients and the patients of many affiliated national associations, we currently support 24/7, over 13,000 patients in 20 countries and are still expanding. We provide support in English, German, Spanish, French, Italian, Portuguese, Turkish, Arabic, Hebrew, Russian and Japanese. Learn more at www.fmfandaid.org.