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Taking a Closer Look at Advocacy: Accelerating The Cures of Tomorrow

August 15, 2018 Ruth O'Keefe Leave a Comment

Rare Genomics Institute - Blog - Bottom Story

More than just an organization, advocacy partner, the Rare Genomics Institute (RG), is a community dedicated to helping rare disease patients find hope for a cure. Sharing a mission of… CONTINUE

Filed Under: Advocacy, Partners Tagged With: advocacy, advocacy partner, genetic condition, genetic disease, genetic disorder, iHope, Illumina, inherited condition, inherited disease, Len Barker, patient advocacy, Rare Disease, Rare Genomics Institute, Romina Oritz, tgadvocacy

Taking a Closer Look at Advocacy: Creating Hope with a Support Network for the Rare Disease Community

August 1, 2018 Ruth O'Keefe Leave a Comment

ThinkGenetic is honored to partner with many incredible organizations, each with their own stories, struggles and triumphs. This month, we are taking a moment to highlight the incredible work of… CONTINUE

Filed Under: Advocacy, Partners Tagged With: advocacy, advocacy partner, funding research, genetic condition, genetic disease, genetic disorder, inherited condition, inherited disease, patient advocacy, Rare Disease, Rare Disease Foundation, tgadvocacy

ThinkGenetic Supports Homocystinuria Patients Through Partnership with HCU Network Australia

March 28, 2018 Ruth O'Keefe Leave a Comment

ThinkGenetic welcomes HCU Network Australia to the ThinkGenetic Advocacy Partner Program. Through this partnership, people impacted by the genetic condition homocystinuria in Australia and beyond will have a wider array of… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, HCU Network Australia, Homocystinuria, Len Barker, tgadvocacy

Partnering to Bring Meaningful Progress Toward Treatments and Cures for Fatal Neurodegenerative Disorder

March 21, 2018 Ruth O'Keefe Leave a Comment

Beyond Batten Disease Foundation Partners with ThinkGenetic in Support of Mission Spearheading a unique, cohesive strategy, Beyond Batten Disease Foundation has added ThinkGenetic to its collaborators by joining the ThinkGenetic… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, Batten disease, BBDF, Beyond Batten Disease Foundation, genetic disease, Len Barker, Mary Beth Kiser, vision loss

Advocacy Partnership Raises Awareness of Stomach Cancer as a Global Issue

March 7, 2018 Ruth O'Keefe Leave a Comment

Advocacy Partnership with No Stomach for Cancer Raises Profile of Valuable Stomach Cancer and Hereditary Diffuse Gastric Cancer Resources No Stomach For Cancer (NSFC), a worldwide organization known for helping… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, advocacy partners, CD1 gene, gastric cancer, HDGC, Hereditary Diffuse Gastic Cancer, Len Barker, No Stomach for Cancer, stomach cancer

Kids with Pfeiffer Syndrome Get More Support with ThinkGenetic / BORN A HERO Partnership

February 7, 2018 Ruth O'Keefe Leave a Comment

BORN A HERO has joined the ThinkGenetic Advocacy Partner Program to help educate the world about children and others with the genetic condition Pfeiffer syndrome. Through this partnership, more people… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, Born a Hero, Len Barker, Pfeiffer syndrome, tgadvocacy

Bringing Light to Rare Neuromuscular Disease with New ThinkGenetic Advocacy Partnership

January 5, 2018 Ruth O'Keefe 2 Comments

Neuromuscular Disease Foundation Partners with ThinkGenetic to Boost Awareness In a move that will broaden the reach of valuable resources available to those living with GNE Myopathy (or HIBM), the… CONTINUE

Filed Under: Education, Partners Tagged With: advocacy partner, GNE Myopathy, HIBM, Lale' Welsh, Len Barker, Neuromuscular Disease Foundation, partnership, ThinkGenetic

ThinkGenetic Boosts Kabuki Syndrome Awareness by Recognizing Advocacy Partnership with All Things Kabuki

October 23, 2017 Len Barker Leave a Comment

 All Things Kabuki became one of the earliest ThinkGenetic Advocacy Partners when it joined the Advocacy Partner Program in September 2016. Today, we mark Kabuki Syndrome Awareness Day (#kabukisyndrome) by… CONTINUE

Filed Under: Education, Partners Tagged With: advocacy partner, All Things Kabuki, kabuki, partnership, ThinkGenetic

Canadian Fabry Association Partners with ThinkGenetic To Broaden Support for Patients with Fabry Disease

October 18, 2017 Ruth O'Keefe Leave a Comment

The Canadian Fabry Association (CFA), a non-profit organization raising awareness and educating the public about Fabry disease, has joined ThinkGenetic’s Advocacy Partner program. The CFA is committed to improving the… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, Canadian Fabry Association, CFA, Fabry, Julia Alton, Len Barker, partnership

ThinkGenetic Aims to Help Young Children with Seizures with New Advocacy Partner, IFCR

October 3, 2017 Len Barker Leave a Comment

Today, ThinkGenetic joins the cause to help increase awareness of CDKL5 disorders by welcoming the International Foundation for CDKL5 Research (IFCR) into the ThinkGenetic Advocacy Partner Program. CDKL5 (cyclin-dependent kinase-like… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, CDKL5, IFCR, Len Barker, tgadvocacy

ThinkGenetic Welcomes Thirtieth Organization, Fight Colorectal Cancer, to Advocacy Partner Program

September 25, 2017 Len Barker Leave a Comment

Fight Colorectal Cancer, also known as Fight CRC, has recently enrolled in ThinkGenetic’s expanding Advocacy Partner program, becoming the thirtieth organization to join in the past year. By entering the… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, colorectal cancer, Fight Colorectal Cancer, Fight CRC, Len Barker

ThinkGenetic Collaborates with Sharsheret to Support Jewish Women Facing Breast and Ovarian Cancer

September 12, 2017 Len Barker Leave a Comment

Sharsheret, a national not-for-profit organization supporting young Jewish women and their families facing breast and ovarian cancer, has joined ThinkGenetic’s Advocacy Partner program. Sharsheret, Hebrew for “chain,” is the only… CONTINUE

Filed Under: Partners Tagged With: Adina Fleischmann, advocacy partner, Ashkenazi Jewish, BRCA1, BRCA2, breast cancer, Breast Cancer Awareness, herditary cancer, Len Barker, ovarian cancer, Ovarian Cancer Awareness, Sephardic Jewish, Sharsheret

ThinkGenetic Donates $500 to Advocacy Partner, cureCADASIL

September 8, 2017 Ruth O'Keefe Leave a Comment

    Congratulations to ThinkGenetic Advocacy Partner, cureCADASIL, who received a donation of $500 from ThinkGenetic. The donation amount was based on converted ThinkPoints, which ThinkGenetic users accrued in August 2017. The… CONTINUE

Filed Under: News, Partners Tagged With: advocacy partner, cureCADASIL, donation, support

ThinkGenetic and Children’s Craniofacial Association Team Up to Build a More Inclusive World for Kids

August 15, 2017 Len Barker Leave a Comment

In a show of mutual support for children and families with facial differences, Children’s Craniofacial Association (CCA) has just become a member of ThinkGenetic’s Advocacy Partner Program. The growing program… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, CCA, children’s craniofacial association, Erica Mossholder, Len Barker

International Umbrella Organization Joins ThinkGenetic Advocacy Partner Program

June 27, 2017 Ruth O'Keefe Leave a Comment

FMF & AID (familial Mediterranean fever and autoinflammatory diseases) Global Association has become an official ThinkGenetic Advocacy Partner, continuing the ThinkGenetic expansion worldwide. “Genetic conditions know no boundaries, and neither… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, autoinflammatory disease, awareness, Familial Mediterranean Fever, FMF & AID, FMF & AID Global Association, Len Barker, Malena Vetterli

ThinkGenetic Signs First International Advocacy Partner

December 6, 2016 Ruth O'Keefe Leave a Comment

France based support group, Cutis Laxa Internationale, becomes first International ThinkGenetic Advocacy Partner Cutis Laxa Internationale became an official ThinkGenetic Advocacy Partner today, the first advocacy partner based outside the… CONTINUE

Filed Under: News, Partners Tagged With: advocacy, advocacy group, advocacy partner, Cutis Laxa, Cutis Laxa Internationale, Dave Jacob, Marie-Claude Boiteux, Partners, partnership, Ruth O'Keefe, support group, ThinkGenetic

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