by Jennifer Dykeman, MMSc Candidate, 2023 February 28th is Rare Disease Day! In the United States, a disease is defined as rare if it affects less than 200,000 people. It… CONTINUE
Event: Care Models and Advocating for Yourself with CARES Foundation
Are you living with or caring for someone with adrenal insufficiency (such as CAH, Addison’s disease, and PCOS)? You’re invited to a special online event… Webinar: Care Models; Advocating for… CONTINUE
Ruth O’Keefe Promoted to ThinkGenetic Vice President, Marketing and Patient Advocacy
BOSTON, Ma., April 2, 2019 (Newswire.com) – ThinkGenetic, Inc. (www.ThinkGenetic.com), is excited to announce the promotion of Ruth O’Keefe to Vice President, Marketing and Patient Advocacy. ThinkGenetic, the creators of… CONTINUE
Taking a Closer Look at Advocacy: Accelerating The Cures of Tomorrow
More than just an organization, advocacy partner, the Rare Genomics Institute (RG), is a community dedicated to helping rare disease patients find hope for a cure. Sharing a mission of… CONTINUE
Endless Hope for Klippel-Feil Syndrome
Editor’s Note: It has been such an honor working with Sharon Rose to represent the Klippel-Feil syndrome (KFS) community. Sharon Rose shared her strong desire to work with ThinkGenetic to… CONTINUE
Taking a Closer Look at Advocacy: Creating Hope with a Support Network for the Rare Disease Community
ThinkGenetic is honored to partner with many incredible organizations, each with their own stories, struggles and triumphs. This month, we are taking a moment to highlight the incredible work of… CONTINUE
Connecting, Collaborating, and Activating at the Vibrant 2017 RARE Patient Advocacy Summit
While many of our ThinkGenetic teammates helped others “harness their inner power” at the National Society of Genetic Counselors Annual Conference in Columbus, Ohio, ThinkGenetic CEO, Dave Jacob and I… CONTINUE
ThinkGenetic Signs First International Advocacy Partner
France based support group, Cutis Laxa Internationale, becomes first International ThinkGenetic Advocacy Partner Cutis Laxa Internationale became an official ThinkGenetic Advocacy Partner today, the first advocacy partner based outside the… CONTINUE
Lauren Potter Has It All… Including an Extra Chromosome!
Lauren Potter, 26, is one of the most famous people living with Down Syndrome (also known as Trisomy 21). Lauren’s role as teenager Becky Jackson on Glee from 2009-2015, brought… CONTINUE
Partner Agreement with FSIG will Help Get Answers to the Fabry Disease Community
In a showing of mutual respect and appreciation, Fabry Support & Information Group (FSIG) signed an Advocate Partnership Agreement with ThinkGenetic. “We are truly thrilled to partner with ThinkGenetic and… CONTINUE