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Endless Hope for Klippel-Feil Syndrome

August 6, 2018 Ruth O'Keefe 6 Comments

Awareness - Klippel-Feil syndrome - ThinkGenetic

Editor’s Note: It has been such an honor working with Sharon Rose to represent the Klippel-Feil syndrome (KFS) community. Sharon Rose shared her strong desire to work with ThinkGenetic to… CONTINUE

Filed Under: Advocacy, Education Tagged With: advocacy, advocate, awareness, chronic pain, Coordination of Rare Diseases at Sanford, Ehlers-Danlos syndrome, Emily Lemiska, KFS, KFS Freedom, Klippel-Feil Syndrome, Philip Giampietro, raredisease, research, Sharon Rose Nissley, St. Christopher’s Hospital for Children

ThinkGenetic Supports Pregnant Women with New Advocacy Partner, National CMV Foundation

December 18, 2017 Ruth O'Keefe Leave a Comment

In a move to help educate pregnant women and those of childbearing age learn about congenital cytomegalovirus (CMV), ThinkGenetic and the National CMV Foundation have entered into an Advocacy Partner… CONTINUE

Filed Under: Partners Tagged With: advocacy partners, advocate, CMV, congenital CMV, Cytomegalovirus, National CMV Foundation, pregnancy, viral infection

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