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June book spotlight: “Run to the Light” by Laura King Edwards

June 4, 2021 Jessica Dronen, MS, CGC Leave a Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist Welcome to ThinkGenetic’s June genetic book spotlight!  In this series we combine a review of one or more books… CONTINUE

Filed Under: Advocacy, Education, News Tagged With: Batten disease, Batten Disease Support and Research Association, BBDF, BDSRA, Beyond Batten Foundation, book club, Family Education Conference, International Batten Disease Awareness Day, Jessica Dronen, Laura King Edwards, neuronal ceroid lipofuscinoses, Run to the Light, Sibling Leadership Network, Sibling Leadership Network Conference, Sibling Support Project, SibShops

May Book Spotlight: “Salt in My Soul: An Unfinished Life” by Mallory Smith

May 7, 2021 Jessica Dronen, MS, CGC Leave a Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist, ThinkGenetic Welcome to ThinkGenetic’s May genetic book spotlight!  In this series we combine a review of one or more… CONTINUE

Filed Under: Education, Genetic Book Club Tagged With: #CFawareness, #CFAwarenessMonth, #CysticFibrosis, book club, cystic fibrosis, Jessica Dronen

April Book Spotlight: “Can I Play if I Have Fabry?” by Dawn Laney

April 8, 2021 Jessica Dronen, MS, CGC 1 Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist, ThinkGenetic Welcome to ThinkGenetic’s first genetic book spotlight! Starting this month we will be pairing a review of one… CONTINUE

Filed Under: Education, Genetic Book Club Tagged With: book club, Can I Play if I Have Fabry, childrens book, Dawn Jacob, Dawn Jacob Laney, Fabry, Fabry disease, Fabry Support and Information Group, FSIG, Jessica Dronen, National Fabry Disease Foundation, NFDF

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