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How Being Your Own Best Advocate Can Lead to Better Care for Genetic Conditions

May 2, 2018 Morgan Simmons, MMSc, CGC 2 Comments

by Deon Durst, Guest Contributor, Patient Advocate Living with Cat Eye Syndrome Editor’s Note: I am overjoyed to share this informative piece written by a gentleman who first contacted us… CONTINUE

Filed Under: Advocacy, Education Tagged With: Cat Eye Syndrome, diagnosis, genetic diagnosis, ocular coloboma, patient advocacy, patient advocate, self-advocacy, ThinkGenetic

ThinkGenetic Joins Forces with C22C

August 30, 2016 Ruth O'Keefe 2 Comments

C22C Master Logo small

ThinkGenetic is pleased to announce the advocacy partnership with Chromosome 22 Central, Inc., also known as C22C. Chromosome 22 Central is a parent powered support organization founded in 1997 to… CONTINUE

Filed Under: News, Partners Tagged With: 22q11.2 syndrome, C22C, Cat Eye Syndrome, Chromosome 22 Central, chromosome 22 disorders, Emanuel Syndrome, genetic health, Len Barker, Mosaic Trisomy 22, Murney Rinholm, partnership, Phelan-McDermid Syndrome, Ruth O'Keefe

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