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Supporting Rare Disease Day 2022

February 25, 2022 Jennifer Dykeman 2 Comments

by Jennifer Dykeman, MMSc Candidate, 2023 February 28th is Rare Disease Day! In the United States, a disease is defined as rare if it affects less than 200,000 people. It… CONTINUE

Filed Under: Advocacy, Advocacy Alliance, Events, News Tagged With: advocacy, Find a Genetic Counselor, GARD, Genetic and Rare Disease Information Center, National Organization for Rare Diseases, National Society of Genetic Counselor, NIH, NORD, NSGC, patient services, Rare Disease Day

Healthy Communities Healthy Babies – It’s National Birth Defects Awareness Month!

January 10, 2022 Jessica Dronen, MS, CGC Leave a Comment

January is National Birth Defects Awareness Month (NBDAM)!  Did you know that 1 in 33 babies born in the United States has a birth defect? That’s about one baby born… CONTINUE

Filed Under: Advocacy, Education Tagged With: birth defects, CDC, Centers for Disease Control and Prevention, cleft lip, cleft palate, club foot, Find a Genetic Counselor, MotherToBaby, National Birth Defects Awareness Month, National Birth Defects Prevention Network, NBDAM, NBDPN, spina bifida, The National Society of Genetic Counselors

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