More than just an organization, advocacy partner, the Rare Genomics Institute (RG), is a community dedicated to helping rare disease patients find hope for a cure. Sharing a mission of… CONTINUE
Could a Biological Trojan Horse Help Us Cure Genetic Diseases?
Most medical treatments fall into four broad categories based on their goal: Preventive/prophylactic – avoiding the disease altogether Disease management – taking steps to ensure a long and healthy life… CONTINUE
Taking a Closer Look at Advocacy: Creating Hope with a Support Network for the Rare Disease Community
ThinkGenetic is honored to partner with many incredible organizations, each with their own stories, struggles and triumphs. This month, we are taking a moment to highlight the incredible work of… CONTINUE
NGLY1 Added to ThinkGenetic Genetic Condition Knowledge Base
Co-founded by a patient advocate and a genetic counselor, ThinkGenetic helps individuals harness their personal power of advocacy by offering trustworthy information to guide them to the help they need,… CONTINUE
Resilience: The Art of Caregiving
Preparing for Curves, Bumps, and Wrong Turns by Adding a Dose of Resilience By Adrienne D. Witol, PsyD, R Psych, Guest Contributor Editor’s Note: I am so tickled that my colleague… CONTINUE
Banging on the Newborn Screening Testing Ceiling: Unsung Hero-Advocates in Genetics
Can you hear that faint thumping? The one that syncs with your heart when you lie quietly in bed after the kids are finally asleep after B-B-B (Bath-Book-Bed)? That is… CONTINUE
Genetic disease. Genetic condition. Genetic disorder. Is there a difference?
This question comes up often. To be honest, even after my training in genetic counseling, I’ve had to Google the difference between these terms not just once, but multiple times…. CONTINUE
Recent ThinkGenetic.com Condition Additions for 07/30/2017
ThinkGenetic strives to create, update, and review content regularly to ensure the information we provide is accurate, referenced, and available 24/7 to anyone searching for answers on genetic conditions and… CONTINUE
Recent ThinkGenetic.com Condition Additions for 06/23/2017
ThinkGenetic strives to create, update, and review content regularly to ensure the information we provide is accurate, referenced, and available 24/7 to anyone searching for answers on genetic conditions and… CONTINUE
Site Update for Week of 01/17/2017
ThinkGenetic strives to create, update and review content regularly to ensure the information we provide is accurate, referenced and available 24/7 to anyone searching for answers on genetic diseases and… CONTINUE
Weekly Site Update for 11/15/2016
ThinkGenetic strives to create, update and review content regularly to ensure the information we provide is accurate, referenced and available 24/7 to our audience. If you wish to see your… CONTINUE
Top Five Reasons to Join a Support Group
Living with or being the caregiver, family member, or friend of someone living with a genetic condition can be overwhelming at times. In addition to having questions and concerns, many… CONTINUE
Weekly Site Update for 09/12/2016
ThinkGenetic strives to create, update and review content regularly to ensure the information we provide is accurate, referenced and available 24/7 to our audience. If you wish to see your… CONTINUE
Why My Kindred Spirit is a Rock Star
At first glance, it may not seem Austin Carlile, the front-man of the metal-core band Of Mice & Men and I have much in common. We grew up about 100… CONTINUE
Partner Agreement with FSIG will Help Get Answers to the Fabry Disease Community
In a showing of mutual respect and appreciation, Fabry Support & Information Group (FSIG) signed an Advocate Partnership Agreement with ThinkGenetic. “We are truly thrilled to partner with ThinkGenetic and… CONTINUE