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ThinkGenetic Supports Homocystinuria Patients Through Partnership with HCU Network Australia

March 28, 2018 Ruth O'Keefe Leave a Comment

ThinkGenetic welcomes HCU Network Australia to the ThinkGenetic Advocacy Partner Program. Through this partnership, people impacted by the genetic condition homocystinuria in Australia and beyond will have a wider array of… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, HCU Network Australia, Homocystinuria, Len Barker, tgadvocacy

Partnership in the FDNA Year of Discovery

May 15, 2017 Carol Ogg, BS Pharm 2 Comments

   Not too long ago it was taught in medical school that rare diseases were just that- rare and you probably wouldn’t see a patient with a rare disease in… CONTINUE

Filed Under: Education, Partners Tagged With: Carol Ogg, Fabry, Fabry disease, Face2Gene, Facial Phenotypes, FDNA, Homocystinuria, IEM, inborn errors of metabolism, inherited metablic disorder, LSD, lysosomal storage diseases, metabolic conditions, MPS Diseases, Mucopolysaccharidosis, Rare Disease, Year of Discovery

How a Social Post Forged a Partnership with HCU Network America

March 17, 2017 Ruth O'Keefe Leave a Comment

After highlighting Homocystinuria, an inherited disorder where the body is unable to process some of the building blocks of the body, in the Genetic Condition of the Day campaign, ThinkGenetic… CONTINUE

Filed Under: News, Partners Tagged With: Danae' Bartke, geneti condition, HCU Network America, Homocystinuria, Len Barker, partner, social awareness

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