More than just an organization, advocacy partner, the Rare Genomics Institute (RG), is a community dedicated to helping rare disease patients find hope for a cure. Sharing a mission of… CONTINUE
ThinkGenetic Supports Homocystinuria Patients Through Partnership with HCU Network Australia
ThinkGenetic welcomes HCU Network Australia to the ThinkGenetic Advocacy Partner Program. Through this partnership, people impacted by the genetic condition homocystinuria in Australia and beyond will have a wider array of… CONTINUE
Partnering to Bring Meaningful Progress Toward Treatments and Cures for Fatal Neurodegenerative Disorder
Beyond Batten Disease Foundation Partners with ThinkGenetic in Support of Mission Spearheading a unique, cohesive strategy, Beyond Batten Disease Foundation has added ThinkGenetic to its collaborators by joining the ThinkGenetic… CONTINUE
Advocacy Partnership Raises Awareness of Stomach Cancer as a Global Issue
Advocacy Partnership with No Stomach for Cancer Raises Profile of Valuable Stomach Cancer and Hereditary Diffuse Gastric Cancer Resources No Stomach For Cancer (NSFC), a worldwide organization known for helping… CONTINUE
Kids with Pfeiffer Syndrome Get More Support with ThinkGenetic / BORN A HERO Partnership
BORN A HERO has joined the ThinkGenetic Advocacy Partner Program to help educate the world about children and others with the genetic condition Pfeiffer syndrome. Through this partnership, more people… CONTINUE
2017 – ThinkGenetic Builds Patient – First Reputation with SymptomMatcher and More
As the President of ThinkGenetic, I am responsible for ensuring the company makes steady progress toward our goals. I provide regular feedback on this progress to our board members, investors,… CONTINUE
Bringing Light to Rare Neuromuscular Disease with New ThinkGenetic Advocacy Partnership
Neuromuscular Disease Foundation Partners with ThinkGenetic to Boost Awareness In a move that will broaden the reach of valuable resources available to those living with GNE Myopathy (or HIBM), the… CONTINUE
“Rare is Everywhere” Author Partners with ThinkGenetic
Deborah Katz, health practitioner, author, illustrator, and founder of Rare is Everywhere Global Productions, has officially partnered with ThinkGenetic to support those living with rare genetic disorders. In November 2016,… CONTINUE
Canadian Fabry Association Partners with ThinkGenetic To Broaden Support for Patients with Fabry Disease
The Canadian Fabry Association (CFA), a non-profit organization raising awareness and educating the public about Fabry disease, has joined ThinkGenetic’s Advocacy Partner program. The CFA is committed to improving the… CONTINUE
ThinkGenetic Aims to Help Young Children with Seizures with New Advocacy Partner, IFCR
Today, ThinkGenetic joins the cause to help increase awareness of CDKL5 disorders by welcoming the International Foundation for CDKL5 Research (IFCR) into the ThinkGenetic Advocacy Partner Program. CDKL5 (cyclin-dependent kinase-like… CONTINUE
ThinkGenetic Partners with ACD in Advocacy of People with Under-Recognized Genetic Metabolic Conditions
Committed to providing resources to individuals about genetic diseases that is informed by patients and families, ThinkGenetic has teamed up with an organization dedicated to the three cerebral creatine deficiency… CONTINUE
ThinkGenetic Welcomes Thirtieth Organization, Fight Colorectal Cancer, to Advocacy Partner Program
Fight Colorectal Cancer, also known as Fight CRC, has recently enrolled in ThinkGenetic’s expanding Advocacy Partner program, becoming the thirtieth organization to join in the past year. By entering the… CONTINUE
ThinkGenetic Collaborates with Sharsheret to Support Jewish Women Facing Breast and Ovarian Cancer
Sharsheret, a national not-for-profit organization supporting young Jewish women and their families facing breast and ovarian cancer, has joined ThinkGenetic’s Advocacy Partner program. Sharsheret, Hebrew for “chain,” is the only… CONTINUE
ThinkGenetic and Children’s Craniofacial Association Team Up to Build a More Inclusive World for Kids
In a show of mutual support for children and families with facial differences, Children’s Craniofacial Association (CCA) has just become a member of ThinkGenetic’s Advocacy Partner Program. The growing program… CONTINUE
International Umbrella Organization Joins ThinkGenetic Advocacy Partner Program
FMF & AID (familial Mediterranean fever and autoinflammatory diseases) Global Association has become an official ThinkGenetic Advocacy Partner, continuing the ThinkGenetic expansion worldwide. “Genetic conditions know no boundaries, and neither… CONTINUE
ThinkGenetic Announces Deepti Babu, MS, CGC as Vice President of Communications and Patient Advocacy
ThinkGenetic is happy to announce the hire of certified genetic counselor and medical writer, Deepti Babu, to Vice President of Communications and Patient Advocacy. She will have the primary responsibility… CONTINUE
How a Social Post Forged a Partnership with HCU Network America
After highlighting Homocystinuria, an inherited disorder where the body is unable to process some of the building blocks of the body, in the Genetic Condition of the Day campaign, ThinkGenetic… CONTINUE
Genetic Alliance Turns 30! – Thoughts on the Un-Conference
On March 9-10, 2017 Genetic Alliance hosted a meeting, titled Co-Creating A Healthy Future. This year’s meeting happened to coincide with the 30th anniversary of the founding of the group…. CONTINUE
Davalen Spawns ThinkGenetic and Exits the Consulting Services Market
After 10 years as an IBM premier partner of consulting services in the collaborative solutions market, the Davalen LLC team has moved on to helping people living with genetic conditions. … CONTINUE
ThinkGenetic in 2016: A Message from the President
Preparing for this article on a year in the life of ThinkGenetic required the collection of statistics about financial and content contributors, website visitors, research and development activities, and partner… CONTINUE
From Submarines to Genetic Diseases, Finding Answers Across the Decades
The year is 1983. I had just finished Navy Nuclear Power School, Ronald Reagan was president and the fledgling National Organization for Rare Disorders (NORD) helped pass the Orphan Drug… CONTINUE
ThinkGenetic Extends Handshake to the National Gaucher Foundation
Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease In a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with… CONTINUE
Laney Recruits Genetic Counselors to Help Fix Genetic Information on the Internet
For nearly twenty years, genetic counselor Dawn Jacob Laney, MS, CGC, CCRC, has scoured the internet for information related to her passion – genetic diseases and disorders. Her first foray… CONTINUE
ThinkGenetic Joins Forces with C22C
ThinkGenetic is pleased to announce the advocacy partnership with Chromosome 22 Central, Inc., also known as C22C. Chromosome 22 Central is a parent powered support organization founded in 1997 to… CONTINUE
Commissioning IBM Watson™ for Genetic Disease
Sometimes your next business adventure comes from the most unlikely of situations. Like many small business owners, Len Barker found himself diving into a new pool of opportunity after being… CONTINUE
Ready for Life Science Fast Track 2016 by The Capital Network?
Co-Founders Dave Jacob and Len Barker will be attending the Life Sciences Fast Track 2016 on Thursday, February 25, 2016 from 9:00 AM to 4:30 PM at the Nutter McClennen &… CONTINUE
IBM and ThinkGenetic Sign Commercial Agreement to Use Watson
After a rigorous review of the ThinkGenetic business plan, IBM signed a commercial agreement allowing the use of Watson in the ThinkGenetic product. Using expertise in information science, library science… CONTINUE