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Part 2 of ThinkGenetic Leadership Team Interview with RV Radio

December 16, 2022 Ruth O'Keefe 1 Comment

In this second part of episode 4, RV Radio with Robinson Ventures continue the conversation with four members of the ThinkGenetic Leadership Team to focus the conversation on the day-to-day… CONTINUE

Filed Under: News, Press Tagged With: Cian Robinson, Dave Jacob, Dawn Laney, FindEHR, investment, Len Barker, podcast, Robinson Ventures, Ruth O'Keefe, RV Radio, startup, SymptomMatcher, ThinkGenetic

Part 1 of ThinkGenetic Leadership Team Interview with RV Radio

November 22, 2022 Ruth O'Keefe 1 Comment

The ThinkGenetic leadership team was recently interviewed for the RV Radio podcast with Cian Robinson, discussing the origin of ThinkGenetic while giving insight into what it’s like to be diagnosed… CONTINUE

Filed Under: News, Team Tagged With: AccelerateSouth, Cian Robinson, Dave Jacob, Dawn Laney, Lafayette, Len Barker, MassChallenge, Robinson Ventures, Ruth O'Keefe, RV Radio, Shire, startup, Takeda, ThinkGenetic, Tucker Robinson

ThinkGenetic Announces Rene Matz as New Vice President of Business Development to Expand Global Adoption of Genetic Condition Product Lines FindEHR and SymptomMatcher

November 10, 2022 Ruth O'Keefe Leave a Comment

ThinkGenetic, Inc. recently announced the hire of business development expert, Rene Matz, RN as Vice President of Business Development. She will be primarily responsible for collaborating with pharmaceutical, biotech companies,… CONTINUE

Filed Under: News, Team Tagged With: Board of Advisors, Business Development, Carol Ogg, FindEHR, Len Barker, Rene Matz, SymptomMatcher, Team, ThinkGenetic

Taking a Closer Look at Advocacy: Accelerating The Cures of Tomorrow

August 15, 2018 Ruth O'Keefe Leave a Comment

Rare Genomics Institute - Blog - Bottom Story

More than just an organization, advocacy partner, the Rare Genomics Institute (RG), is a community dedicated to helping rare disease patients find hope for a cure. Sharing a mission of… CONTINUE

Filed Under: Advocacy, Partners Tagged With: advocacy, advocacy partner, genetic condition, genetic disease, genetic disorder, iHope, Illumina, inherited condition, inherited disease, Len Barker, patient advocacy, Rare Disease, Rare Genomics Institute, Romina Oritz, tgadvocacy

ThinkGenetic Supports Homocystinuria Patients Through Partnership with HCU Network Australia

March 28, 2018 Ruth O'Keefe Leave a Comment

ThinkGenetic welcomes HCU Network Australia to the ThinkGenetic Advocacy Partner Program. Through this partnership, people impacted by the genetic condition homocystinuria in Australia and beyond will have a wider array of… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, HCU Network Australia, Homocystinuria, Len Barker, tgadvocacy

Partnering to Bring Meaningful Progress Toward Treatments and Cures for Fatal Neurodegenerative Disorder

March 21, 2018 Ruth O'Keefe 1 Comment

Beyond Batten Disease Foundation Partners with ThinkGenetic in Support of Mission Spearheading a unique, cohesive strategy, Beyond Batten Disease Foundation has added ThinkGenetic to its collaborators by joining the ThinkGenetic… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, Batten disease, BBDF, Beyond Batten Disease Foundation, genetic disease, Len Barker, Mary Beth Kiser, vision loss

Advocacy Partnership Raises Awareness of Stomach Cancer as a Global Issue

March 7, 2018 Ruth O'Keefe Leave a Comment

Advocacy Partnership with No Stomach for Cancer Raises Profile of Valuable Stomach Cancer and Hereditary Diffuse Gastric Cancer Resources No Stomach For Cancer (NSFC), a worldwide organization known for helping… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, advocacy partners, CD1 gene, gastric cancer, HDGC, Hereditary Diffuse Gastic Cancer, Len Barker, No Stomach for Cancer, stomach cancer

Kids with Pfeiffer Syndrome Get More Support with ThinkGenetic / BORN A HERO Partnership

February 7, 2018 Ruth O'Keefe Leave a Comment

BORN A HERO has joined the ThinkGenetic Advocacy Partner Program to help educate the world about children and others with the genetic condition Pfeiffer syndrome. Through this partnership, more people… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, Born a Hero, Len Barker, Pfeiffer syndrome, tgadvocacy

2017 – ThinkGenetic Builds Patient – First Reputation with SymptomMatcher and More

January 31, 2018 Len Barker 1 Comment

As the President of ThinkGenetic, I am responsible for ensuring the company makes steady progress toward our goals. I provide regular feedback on this progress to our board members, investors,… CONTINUE

Filed Under: News, Updates Tagged With: artifical intelligence, genetic counselor, genetic counselors, genetic disease, geneticists, information scientists, Len Barker, PULSE@MassChallenge, Shire, SymptomMatcher, ThinkGenetic, Year in Review

Bringing Light to Rare Neuromuscular Disease with New ThinkGenetic Advocacy Partnership

January 5, 2018 Ruth O'Keefe 2 Comments

Neuromuscular Disease Foundation Partners with ThinkGenetic to Boost Awareness In a move that will broaden the reach of valuable resources available to those living with GNE Myopathy (or HIBM), the… CONTINUE

Filed Under: Education, Partners Tagged With: advocacy partner, GNE Myopathy, HIBM, Lale' Welsh, Len Barker, Neuromuscular Disease Foundation, partnership, ThinkGenetic

“Rare is Everywhere” Author Partners with ThinkGenetic

November 29, 2017 Ruth O'Keefe Leave a Comment

Deborah Katz, health practitioner, author, illustrator, and founder of Rare is Everywhere Global Productions, has officially partnered with ThinkGenetic to support those living with rare genetic disorders. In November 2016,… CONTINUE

Filed Under: Partners Tagged With: Deborah Katz, Len Barker, Rare Disease Foundation, Rare is Everywhere, Rare is Everywhere Global Productions

Canadian Fabry Association Partners with ThinkGenetic To Broaden Support for Patients with Fabry Disease

October 18, 2017 Ruth O'Keefe Leave a Comment

The Canadian Fabry Association (CFA), a non-profit organization raising awareness and educating the public about Fabry disease, has joined ThinkGenetic’s Advocacy Partner program. The CFA is committed to improving the… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, Canadian Fabry Association, CFA, Fabry, Julia Alton, Len Barker, partnership

ThinkGenetic Aims to Help Young Children with Seizures with New Advocacy Partner, IFCR

October 3, 2017 Len Barker Leave a Comment

Today, ThinkGenetic joins the cause to help increase awareness of CDKL5 disorders by welcoming the International Foundation for CDKL5 Research (IFCR) into the ThinkGenetic Advocacy Partner Program. CDKL5 (cyclin-dependent kinase-like… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, CDKL5, IFCR, Len Barker, tgadvocacy

ThinkGenetic Partners with ACD in Advocacy of People with Under-Recognized Genetic Metabolic Conditions

October 2, 2017 Len Barker Leave a Comment

Committed to providing resources to individuals about genetic diseases that is informed by patients and families, ThinkGenetic has teamed up with an organization dedicated to the three cerebral creatine deficiency… CONTINUE

Filed Under: Partners Tagged With: ACD, advocacy partners, Association for Creatine Deficiencies, CCD, GAMT, genetic conditions, Guanidinoacetate methyltransferase deficiency, Len Barker, metabolic conditions, ThinkGenetic, Whitnie Strauss

ThinkGenetic Welcomes Thirtieth Organization, Fight Colorectal Cancer, to Advocacy Partner Program

September 25, 2017 Len Barker Leave a Comment

Fight Colorectal Cancer, also known as Fight CRC, has recently enrolled in ThinkGenetic’s expanding Advocacy Partner program, becoming the thirtieth organization to join in the past year. By entering the… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, colorectal cancer, Fight Colorectal Cancer, Fight CRC, Len Barker

ThinkGenetic Collaborates with Sharsheret to Support Jewish Women Facing Breast and Ovarian Cancer

September 12, 2017 Len Barker Leave a Comment

Sharsheret, a national not-for-profit organization supporting young Jewish women and their families facing breast and ovarian cancer, has joined ThinkGenetic’s Advocacy Partner program. Sharsheret, Hebrew for “chain,” is the only… CONTINUE

Filed Under: Partners Tagged With: Adina Fleischmann, advocacy partner, Ashkenazi Jewish, BRCA1, BRCA2, breast cancer, Breast Cancer Awareness, herditary cancer, Len Barker, ovarian cancer, Ovarian Cancer Awareness, Sephardic Jewish, Sharsheret

ThinkGenetic and Children’s Craniofacial Association Team Up to Build a More Inclusive World for Kids

August 15, 2017 Len Barker Leave a Comment

In a show of mutual support for children and families with facial differences, Children’s Craniofacial Association (CCA) has just become a member of ThinkGenetic’s Advocacy Partner Program. The growing program… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, CCA, children’s craniofacial association, Erica Mossholder, Len Barker

International Umbrella Organization Joins ThinkGenetic Advocacy Partner Program

June 27, 2017 Ruth O'Keefe Leave a Comment

FMF & AID (familial Mediterranean fever and autoinflammatory diseases) Global Association has become an official ThinkGenetic Advocacy Partner, continuing the ThinkGenetic expansion worldwide. “Genetic conditions know no boundaries, and neither… CONTINUE

Filed Under: Partners Tagged With: advocacy partner, autoinflammatory disease, awareness, Familial Mediterranean Fever, FMF & AID, FMF & AID Global Association, Len Barker, Malena Vetterli

ThinkGenetic Announces Deepti Babu, MS, CGC as Vice President of Communications and Patient Advocacy

June 19, 2017 Ruth O'Keefe Leave a Comment

ThinkGenetic is happy to announce the hire of certified genetic counselor and medical writer, Deepti Babu, to Vice President of Communications and Patient Advocacy. She will have the primary responsibility… CONTINUE

Filed Under: News Tagged With: communication, Deepti Babu, GAGC, genetic condition, genetic counselor, genetic disease, hire, Len Barker, NSGC, patient advocacy

How a Social Post Forged a Partnership with HCU Network America

March 17, 2017 Ruth O'Keefe Leave a Comment

After highlighting Homocystinuria, an inherited disorder where the body is unable to process some of the building blocks of the body, in the Genetic Condition of the Day campaign, ThinkGenetic… CONTINUE

Filed Under: News, Partners Tagged With: Danae' Bartke, geneti condition, HCU Network America, Homocystinuria, Len Barker, partner, social awareness

Genetic Alliance Turns 30! – Thoughts on the Un-Conference

March 16, 2017 Len Barker Leave a Comment

On March 9-10, 2017 Genetic Alliance hosted a meeting, titled Co-Creating A Healthy Future. This year’s meeting happened to coincide with the 30th anniversary of the founding of the group…. CONTINUE

Filed Under: Events Tagged With: Co-Creating A Healthy Future, Francis Collins, Genetic Alliance, Joan Weiss, Len Barker, Mary Davidson, Partners, Sharon Terry, un-conference

Davalen Spawns ThinkGenetic and Exits the Consulting Services Market

January 16, 2017 Len Barker 1 Comment

Davalen Logo

After 10 years as an IBM premier partner of consulting services in the collaborative solutions market, the Davalen LLC team has moved on to helping people living with genetic conditions. … CONTINUE

Filed Under: News Tagged With: Art Whorley, Daniel Jacob, Davalen, Dave Jacob, Deborah Corcoran, IBM partner, Len Barker, LLC, premier ibm business partner, Rokking Marketing, ThinkGenetic

ThinkGenetic in 2016: A Message from the President

January 4, 2017 thinkgenetic 3 Comments

Preparing for this article on a year in the life of ThinkGenetic required the collection of statistics about financial and content contributors, website visitors, research and development activities, and partner… CONTINUE

Filed Under: News, Updates Tagged With: Amandeep Singh, Apache Solr, Carol Ogg, Daniel Jacob, Dave Jacob, Dawn Laney, diagnose genetic conditions, Emory University, Emory University’s Department of Human Genetics, genetic counselors, Graduate students, Human Phenotype Ontology, IBM Watson, Justin McGarvie, Len Barker, MD, Michael Gambello, Morgan Simmons, Peter Wilkerson, Pfizer, Robert Tomaino, Robin Vinson, Rokkit Marketing, Russell Weller, Ruth O'Keefe, Shire, Taylor Cassidy, The Legacy of Angels Foundation, ThinkGenetic Symptom Matcher, thinkgenetic.com, TLOAF, Xavier Mugaruza

From Submarines to Genetic Diseases, Finding Answers Across the Decades

October 13, 2016 Len Barker Leave a Comment

submarine

The year is 1983.  I had just finished Navy Nuclear Power School, Ronald Reagan was president and the fledgling National Organization for Rare Disorders (NORD) helped pass the Orphan Drug… CONTINUE

Filed Under: News Tagged With: EveryLife Foundation, FDA, FDASIA, genetic disease, Len Barker, medication, NORD, orphan drug, Orphan Drug Act

ThinkGenetic Extends Handshake to the National Gaucher Foundation

October 6, 2016 Ruth O'Keefe Leave a Comment

Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease In a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with… CONTINUE

Filed Under: News, Partners Tagged With: education, Gaucher disease, Len Barker, National Gaucher Foundation, NGF, Partners, Ruth O'Keefe

Laney Recruits Genetic Counselors to Help Fix Genetic Information on the Internet

September 28, 2016 Ruth O'Keefe Leave a Comment

For nearly twenty years, genetic counselor Dawn Jacob Laney, MS, CGC, CCRC, has scoured the internet for information related to her passion – genetic diseases and disorders. Her first foray… CONTINUE

Filed Under: News Tagged With: Dawn Laney, Emory University, genetic counselors, genetic disease, genetic sounseling, Global Genes, IBM Watson, Len Barker, NSGC, Rare Disease, Ruth O'Keefe, Sarah Lawrence College, ThinkGenetic

ThinkGenetic Joins Forces with C22C

August 30, 2016 Ruth O'Keefe 2 Comments

C22C Master Logo small

ThinkGenetic is pleased to announce the advocacy partnership with Chromosome 22 Central, Inc., also known as C22C. Chromosome 22 Central is a parent powered support organization founded in 1997 to… CONTINUE

Filed Under: News, Partners Tagged With: 22q11.2 syndrome, C22C, Cat Eye Syndrome, Chromosome 22 Central, chromosome 22 disorders, Emanuel Syndrome, genetic health, Len Barker, Mosaic Trisomy 22, Murney Rinholm, partnership, Phelan-McDermid Syndrome, Ruth O'Keefe

Commissioning IBM Watson™ for Genetic Disease

August 15, 2016 Ruth O'Keefe 3 Comments

Sometimes your next business adventure comes from the most unlikely of situations. Like many small business owners, Len Barker found himself diving into a new pool of opportunity after being… CONTINUE

Filed Under: News Tagged With: Dave Jacob, genetic disease, IBM Watson, Len Barker, supercomputer, ThinkGenetic, Virginia

Ready for Life Science Fast Track 2016 by The Capital Network?

February 19, 2016 thinkgenetic

Co-Founders Dave Jacob and Len Barker will be attending the Life Sciences Fast Track 2016 on Thursday, February 25, 2016 from 9:00 AM to 4:30 PM at the Nutter McClennen &… CONTINUE

Filed Under: Events Tagged With: Dave Jacob, Len Barker, Life Science Fast Track

IBM and ThinkGenetic Sign Commercial Agreement to Use Watson

May 1, 2015 thinkgenetic

After a rigorous review of the ThinkGenetic business plan, IBM signed a commercial agreement allowing the use of Watson in the ThinkGenetic product. Using expertise in information science, library science… CONTINUE

Filed Under: News, Partners Tagged With: Dave Jacob, IBM, IBM Watson, Len Barker, Watson Health

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