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April Book Spotlight: “Can I Play if I Have Fabry?” by Dawn Laney

April 8, 2021 Jessica Dronen, MS, CGC 1 Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist, ThinkGenetic Welcome to ThinkGenetic’s first genetic book spotlight! Starting this month we will be pairing a review of one… CONTINUE

Filed Under: Education, Genetic Book Club Tagged With: book club, Can I Play if I Have Fabry, childrens book, Dawn Jacob, Dawn Jacob Laney, Fabry, Fabry disease, Fabry Support and Information Group, FSIG, Jessica Dronen, National Fabry Disease Foundation, NFDF

6th Annual Fabry Family Medical Conference

September 6, 2016 Ruth O'Keefe Leave a Comment

Featured - NFDF

On September 8-9, 2016 in Greensboro, North Carolina the National Fabry Disease Foundation (NFDF) will be hosting it’s annual Fabry Family Medical Conference. An important event for all individuals with Fabry disease… CONTINUE

Filed Under: Events, News Tagged With: Dave Jacob, Dawn Laney, Emory University, Fabry, Fabry disease, Fabry Family Medical Conference, genetic counselor, National Fabry Disease Foundation, NFDF, Ruth O'Keefe

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