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April Book Spotlight: “Can I Play if I Have Fabry?” by Dawn Laney

April 8, 2021 Jessica Dronen, MS, CGC 1 Comment

by Jessica Dronen, MS, CGC, Genetic Diseases Research and Information Specialist, ThinkGenetic Welcome to ThinkGenetic’s first genetic book spotlight! Starting this month we will be pairing a review of one… CONTINUE

Filed Under: Education, Genetic Book Club Tagged With: book club, Can I Play if I Have Fabry, childrens book, Dawn Jacob, Dawn Jacob Laney, Fabry, Fabry disease, Fabry Support and Information Group, FSIG, Jessica Dronen, National Fabry Disease Foundation, NFDF

Speakers Announced – Lafayette Lunch and Learn

May 30, 2019 Ruth O'Keefe Leave a Comment

The ThinkGenetic Foundation is very excited to announce the confirmed Speakers and Patient Panelists for the upcoming FREE Lunch and Learn:Closing the Genetics Gap: A Discussion on Increasing Education and… CONTINUE

Filed Under: Advocacy, Education, Events, Lafayette Tagged With: Acadiana, Annie Arabie, Carol Ogg, Cynthia Bordelon Durham, Dan Arabie, Dawn Laney, Fabry, FARA, friedreich's ataxia, FSIG, Lafayette, Lafayette General Health, Louisiana, Lunch and Learn, Margaret Landry-Bearb, Matthew Lafleur, NFDF, Robin Richardson, Sanofi Genzyme, ThinkGenetic, ThinkGenetic Foundation, usher, Usher Syndrome Coalition

6th Annual Fabry Family Medical Conference

September 6, 2016 Ruth O'Keefe Leave a Comment

Featured - NFDF

On September 8-9, 2016 in Greensboro, North Carolina the National Fabry Disease Foundation (NFDF) will be hosting it’s annual Fabry Family Medical Conference. An important event for all individuals with Fabry disease… CONTINUE

Filed Under: Events, News Tagged With: Dave Jacob, Dawn Laney, Emory University, Fabry, Fabry disease, Fabry Family Medical Conference, genetic counselor, National Fabry Disease Foundation, NFDF, Ruth O'Keefe

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