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Genetic Alliance Turns 30! – Thoughts on the Un-Conference

March 16, 2017 Len Barker Leave a Comment

On March 9-10, 2017 Genetic Alliance hosted a meeting, titled Co-Creating A Healthy Future. This year’s meeting happened to coincide with the 30th anniversary of the founding of the group…. CONTINUE

Filed Under: Events Tagged With: Co-Creating A Healthy Future, Francis Collins, Genetic Alliance, Joan Weiss, Len Barker, Mary Davidson, Partners, Sharon Terry, un-conference

ThinkGenetic Signs First International Advocacy Partner

December 6, 2016 Ruth O'Keefe Leave a Comment

France based support group, Cutis Laxa Internationale, becomes first International ThinkGenetic Advocacy Partner Cutis Laxa Internationale became an official ThinkGenetic Advocacy Partner today, the first advocacy partner based outside the… CONTINUE

Filed Under: News, Partners Tagged With: advocacy, advocacy group, advocacy partner, Cutis Laxa, Cutis Laxa Internationale, Dave Jacob, Marie-Claude Boiteux, Partners, partnership, Ruth O'Keefe, support group, ThinkGenetic

ThinkGenetic Extends Handshake to the National Gaucher Foundation

October 6, 2016 Ruth O'Keefe Leave a Comment

Advocacy Partnership Leads to Increased Awareness and Future Contributions for Gaucher Disease In a show of support, the National Gaucher Foundation (NGF) has entered into an advocacy partnership agreement with… CONTINUE

Filed Under: News, Partners Tagged With: education, Gaucher disease, Len Barker, National Gaucher Foundation, NGF, Partners, Ruth O'Keefe

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