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Endless Hope for Klippel-Feil Syndrome

August 6, 2018 Ruth O'Keefe 6 Comments

Awareness - Klippel-Feil syndrome - ThinkGenetic

Editor’s Note: It has been such an honor working with Sharon Rose to represent the Klippel-Feil syndrome (KFS) community. Sharon Rose shared her strong desire to work with ThinkGenetic to… CONTINUE

Filed Under: Advocacy, Education Tagged With: advocacy, advocate, awareness, chronic pain, Coordination of Rare Diseases at Sanford, Ehlers-Danlos syndrome, Emily Lemiska, KFS, KFS Freedom, Klippel-Feil Syndrome, Philip Giampietro, raredisease, research, Sharon Rose Nissley, St. Christopher’s Hospital for Children

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