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Supporting Rare Disease Day 2022

February 25, 2022 Jennifer Dykeman 2 Comments

by Jennifer Dykeman, MMSc Candidate, 2023 February 28th is Rare Disease Day! In the United States, a disease is defined as rare if it affects less than 200,000 people. It… CONTINUE

Filed Under: Advocacy, Advocacy Alliance, Events, News Tagged With: advocacy, Find a Genetic Counselor, GARD, Genetic and Rare Disease Information Center, National Organization for Rare Diseases, National Society of Genetic Counselor, NIH, NORD, NSGC, patient services, Rare Disease Day

Do You Love Your Genetic Condition?

March 14, 2018 Morgan Simmons, MMSc, CGC Leave a Comment

ThinkGenetic Blog - Genetic Condition - Bottom Story - Morgan Simmons

Over the last few years, I’ve had the opportunity to work with patients at various stages in their diagnostic odyssey. I’ve seen people who have lived their whole lives knowing… CONTINUE

Filed Under: Education, News Tagged With: diagnosis, diagnostic odyssey, genes, genetic condition, genetic counseling, genetic diagnosis, genetic disease, Marfan syndrome, Morgan Simmons, Rare Disease Day

ThinkGenetic Supports Rare Disease Day – Show Your Rare

February 28, 2018 Ruth O'Keefe 1 Comment

ThinkGenetic is proud to support Rare Disease Day. Why? Because we’re a part of your community! We live and breathe the struggles and triumphs firsthand. Do you know the ThinkGenetic… CONTINUE

Filed Under: Education, Events Tagged With: Brian M. Ashe, Dave Jacob, Katie Brandt, Massachusetts General Hospital, MassBio, MGH, My Rare, National Organization for Rare Disorders, NORD, Rare Disease Day, Ruth O'Keefe, Show Your Rare

Rare Diseases Day 2017: The Cause & Celebrations

February 27, 2017 thinkgenetic Leave a Comment

Organized internationally by The European Organization (EURORDIS) for Rare Disorders and supported in the United States by the National Organization for Rare Disorders (NORD) and Global Genes, the last day… CONTINUE

Filed Under: Events Tagged With: #RareDiseaseDay, EURODIS, NORD, Rare Disease, Rare Disease Day

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