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Event: Care Models and Advocating for Yourself with CARES Foundation

January 7, 2022 Ruth O'Keefe Leave a Comment

Are you living with or caring for someone with adrenal insufficiency (such as CAH, Addison’s disease, and PCOS)? You’re invited to a special online event… Webinar: Care Models; Advocating for… CONTINUE

Filed Under: Advocacy, Events Tagged With: adrenal insufficiency, advocacy, CAH, Care Model, caregiver, CARES Foundation, Cushing syndrome, Dawn Laney, Dina Matos, Emory University, genetic disease, patient care, patient-centered medical homes, PCMH, PCOS, Rare Disease, Spruce Biosciences, ThinkGenetic, webinar

Webinar: Guideline Development for Non‐Physician Clinicians with G‐I‐N NA

June 19, 2017 Ruth O'Keefe 2 Comments

This month, ThinkGenetic’s new Vice President of Communications and Advocacy, Deepti Babu, MS, CGC will be sharing her experience with the National Society of Genetic Counselors’ (NSGC’s) Practice Guidelines Committee… CONTINUE

Filed Under: Events Tagged With: clinician, Deepti Babu, G‐I‐N NA, genetic counselor, guidelines, Iris Tam, Lucia Constantini, nurse, online education, pharmacists, webinar

First International SYNGAP1 Conference and Bridge the Gap – SYNGAP ERF

November 3, 2016 Ruth O'Keefe Leave a Comment

As ThinkGenetic outreach coordinators so much of what we do includes hearing the stories of those with genetic conditions and meeting incredible advocates. One such person our team recently met was Monica Weldon,… CONTINUE

Filed Under: Events, News Tagged With: Bridge the Gap-SYNGAP, Dawn Jacob Laney, Monica Weldon, Ruth O'Keefe, SYNGAP, webinar

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